You are not alone.

Find support and connection

on your journey with sarcoma.

To help you find connection and trustworthy information, we offer resources and a safe place to learn and share.

** For people with Epithelioid Sarcoma and others who have taken Tazmerik ® (Tazemetostat), please see this urgent announcement from the manufacturer.

 

 

Here is a great way to start your sarcoma journey:

Join the Run for Sweet Caroline

The 1st Annual “Run for Sweet Caroline” will be held on April 19, 2026 in honor of beloved wife, mother and friend, Caroline Rhine, who passed away from leiomyosarcoma on November 6, 2024.

  • National Anthem: 7:15am
  • 5K Run/Walk starts 7:30am
  • 1 Mile Run/Walk will start at 8:30am
  • Race timing provided by Accuchip Timing
  • Race Awards: Finisher medal for all participants, trophies for top 3 (M/F) overall and by age group in 5 year increments
  • Race t-shirt for all participants

Countess De Hoernle Park — 1000 Spanish River Blvd., Boca Raton, FL 33431

Race Director:  Michael Rhine 954-304-2837

Sweetcarolinesarcomainc@gmail.com

www.runsignup.com/Race/FL/BocaRaton/RunForSweetCaroline

Managed by Runner’s Edge — Boca Raton, Florida

Here are some other good places to continue on your sarcoma journey:

Read the New Patient Guide

If you feel lost, overwhelmed, or unsure of what to do first, see this guide to help you on your journey as a new patient.

Watch the 2025 Sarcoma Exchange

If you couldn’t attend our annual sarcoma conference, which was packed with relevant and helpful information, don’t worry — you can watch it all here!

Join a Support Group

No journey should be walked alone. Find online or in-person groups to connect with.

Find a Sarcoma Center

Consulting with a sarcoma expert is critical. Here is a map of centers to help you find one in your area.

Get an Expert Opinion

Our generous donors ease the cost of seeking an expert second opinion from a seasoned sarcoma physician.

Ways to Get Involved

Donate

Wear a Ribbon

Raise Awareness

Join Events

Subscribe to our Newsletter

Sign up to receive information about upcoming events as well as resources for education, guidance, and support.

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Sarcoma Alliance

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Why We Exist

When our founder, Suzanne Leider, was diagnosed with sarcoma, it took four years before she met another sarcoma survivor. That’s too long.

Realizing sarcoma patients were underserved, she founded the Sarcoma Alliance in 1999 with the words “guidance, education, and support” in her head.

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Why do we use the sunflower?

Sunflowers are a symbol used around the world to remind everyone affected by sarcoma: You are not alone, you are strong, and there is always hope.

Donate Now

Help improve the lives of people affected by sarcoma.

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