Support Groups

Facebook Support Group

The community is very active and supportive on the Sarcoma Alliance Facebook Group. The group has several thousand members.

Please note that this is a public group so anything you post will be seen by anyone, on or off Facebook.

Imerman Angels

With Imerman Angels, be paired with someone who has been on a similar journey. Imerman Angels was created on the belief that no one should have to face cancer alone.  Through their unique matching process, Imerman Angels partners anyone, any age, any gender, anywhere and any cancer type seeking support with someone just like them—a “Mentor Angel.” A Mentor Angel is a cancer survivor or caregiver who most importantly has faced the same type of diagnosis.

Available Groups

We aim to keep the below section updated with the groups we know about. If you know of a group not yet on this list, please email us at info@sarcomaalliance.org so we can add it.

Online

General Sarcoma

The Association of Cancer Online Resources (ACOR) is a charitable organization, dedicated to providing information and support to cancer patients and those who care for them through Internet mailing lists and Web-based resources. Visit their website.

CancerCare Patient Support Group Visit their website. 

Cozy Cancer Corner for Young Adults – Started by two osteosarcoma survivors, this support group is for cancer patients, survivors, and caregivers in their late teens, twenties, and thirties.  Check them out on Facebook or on Instagram at @cozycancercorner.

Memorial Sloan Kettering Online Support Group Visit their website.

Sarcoma Sunflower Brigade – Sarcoma Support Group on Facebook. To join, click the link below or email Mary Anne Oldford (Patient, Founder, & Administrator) at sarcomasunflowerbrigade@gmail.com.

Smart Patients – an online community where patients and families can learn from one another.

Chondro and Chordomasarcoma

Chondrosarcoma Care & Support GroupVisit the Facebook Group 

Leiomyosarcoma

LMS National Leiomyosarcoma Foundation – Facebook Support Group

Leimyosarcoma Support & Direct Research Foundation (LMSDR) –  LMSDR Facebook Group

Liposarcoma

Liposarcoma Q&A on Facebook  – A private group to disseminate scientific information about liposarcoma. Several sarcoma expert physicians participate in this group including Sarcoma Alliance Board Member, Dr. William Tseng.

Liposarcoma Survivors on Facebook – A private support group for patients and survivors only.

United States

Arizona

Sarcoma Support Group at Arizona Cancer Center
The Arizona Cancer Center would like to invite you to our quarterly Tucson Area Sarcoma Support Group. We have formed an exciting partnership with The Arizona Cancer Center. All meetings will take place at the AZ Cancer Center, North Campus, 3838 N. Campbell Ave., Tucson – Room 1290, from 3:00 – 4:30 pm MST. This meeting is for sarcoma survivors and caregivers. All are welcome. Parking is free. Refreshments will be served.

The quarterly meetings will take place in mid January, April, July, and October. Detailed information will be sent to you – upon request.

For more information, please call oncology social worker, Jill Winter at (520) 694-0845 or jwinter@uncaz.edu

California

Cancer Support Center LA — Support groups, individual counseling, healthy lifestyle classes, educational workshops, children/teen/family support, and social programs provided at no cost. 1990 South Bundy Drive, Suite 100 Orientation meeting required – Tue. 6 – 7 PM or Fri. 10 – 11 AM. For more information, contact: info@cancersupportla.org

Patient and Caregiver Support Group at Saint John’s Health Center No RSVP Required. Free Valet Parking Available with Validation. 2121 Santa Monica Blvd., Santa Monica, CA 90404 1st & 3rd Thursdays of Each Month, 6-8PM For additional information contact: Cherie Nassi, LMFT – 310.314.2555 ext. 2602, cnassi@cancersupportla.org

We have formed an exciting partnership with The Cancer Support Community Redondo Beach. All meetings will take place at The Cancer Support Community Redondo Beach. This meeting is for sarcoma survivors and caregivers. All are welcome. Meetings are currently offered virtually via ZOOM on the 2nd Saturday of the month, 11 AM – 1 PM. CSCRB also provides weekly support groups, healthy lifestyle classes, educational workshops, Kids/Teens support and activities, social programs, and individual/couples/family counseling all completely free of charge. Please note, our temporary location is 121 W. Torrance Blvd., Suite 201, Redondo Beach, CA 90277. For more information, please contact (310) 376-3550 or info@cscrb.org.

Florida

University of Miami Health System The Sarcoma support group will provide education and support for patients affected by sarcoma. It is open to sarcoma patients and their loved ones. Meetings take place once a month from 10:30AM to 12:00PM in Sylvester Conference Room 1301 at 1475 NW 12 Avenue, Miami, FL 33136. Snacks will be provided and parking will be validated. Please check Sylvester.Org for the most up to date information or contact the Sarcoma Social Worker, Marlene Morales, LCSW,MCAP, ICADC at 305-243-4193 for more information.

Georgia

Emory Winship Cancer Institute’s Young Adults With Cancer Support Group. This is a one-hour creative process support group open to all cancer diagnoses for young adult patients (ages 18-40). The first meetings are on the first Tuesday of each month from 5:30-6:30pm in the Glenn Building at Emory University Hospital Midtown (PDF with directions and building map). RSVP Required. For RSVPs or inquiries, please contact facilitators Russell Brown or Nikita Burke at:

Illinois

Sarcoma Support Group at Mercy Hospital & Medical Center Support group for sarcoma patients, spouses, family members, and caregivers. The group meets on Saturdays at 11:00am, 12th Floor Conference Room, Mercy Hospital & Medical Center, 2525 S. Michigan Ave. For more information and to register, please contact Maricel Tenorio at 312-567-2044.

The Sarcoma Cancers Networking Group provides an opportunity to meet with others experiencing a sarcoma diagnosis and their caregivers. The purpose of this group is to exchange information, strategies for making decisions, and support for navigating the cancer experience. This group is offered at no cost for anyone with a sarcoma diagnosis and their caregivers. The group meets bi-monthly on Saturdays from 11:00 am – 1:00 pm at Wellness House, 131 North County Line Road Hinsdale, IL 60521. For additional information, contact Ellen Nieman at enieman@wellnesshouse.org or 630-654-5198.

Kentucky

Sarcoma Networking — Moderated by a counselor, this support group is for sarcoma patients and survivors. Sarcoma Networking meets monthly on every 4th Wednesday from 6:30pm to 8:30pm at Gilda’s Club Kentuckiana in Louisville, Kentucky. Currently, the group meets virtually, but when in-person sessions resume the Clubhouse will host free dinner at 6:00pm just prior to the meeting. Interested participants must register for a free membership with Gilda’s Club to join and confidentially share their diagnosis as part of the registration process. To register or learn more, please contact Gilda’s Club Kentuckiana at (502)-583-0075. To view upcoming group meetings, please refer to this calendar.

Massachusetts

Massachusetts: Sarcoma Support Group at Dana-Farber Cancer Institute This group provides mutual support and education for sarcoma patients and their loved ones. The group serves to foster connections between patients to decrease feelings of isolation. The group meets the first Monday of each month, 12:30-1:30pm. Parking is free and validated in the Smith Garage (located at One Jimmy Fund Way). Registration required. Call Molly Williamson MSW, LICSW at 617-582-9617 to register or for more information.

New York

Virtual Sarcoma Support Group hosted by Memorial Sloan Kettering Hospital. This is a live, online support and education group for people undergoing treatment for sarcoma. It offers them the opportunity to discuss issues that may arise through the course of their treatment, to share their personal experiences, and to provide practical and emotional support for one another. Discussions are led by social workers and meetings occur every third Wendesday of the month from 12-1pm EST. The group is open to everyone, though registration is required to join. Email virtualgroups@mskcc.org to learn more and/or to register.

Ohio

Sarcoma Support Group at The James Cancer Hospital at Ohio State University This support group in Columbus, Ohio started in June 2006 and is open to individuals with sarcoma and/or their caregivers. The group meets the last Tuesday of each month from 6:00pm to 7:30pm (no meetings in December). Stephanie Spielman Comprehensive Breast Center, Second Floor, Rm. 2002, 1145 Olentangy River Rd., Columbus, Ohio 43212. For more information please contact JamesCare for Life at 614-293-6428.

South Carolina

South Carolina: South Carolina Virtual Community
A virtual community of people facing sarcoma that that never leaves anyone behind. Members are instantly welcomed into a network of other people and their families, friends, and support groups. Support comes from the emotional web that is weaved with fellow survivors and for those in need, there is limited and targeted financial support as well. For more information about the group or their community activities, please visit and explore http://sarcomawarriors.org and join them on Facebook to keep up with all of the latest news and events.

Wisconsin

Sarcoma Support Group in Central Wisconsin
Ongoing meetings take place at the American Cancer Society Hope Lodge in Marshfield, WI at the downstairs meeting room, from 6-7 pm, on the 3rd Wednesday of each month. Richard Nesbitt will be running the support group.

International

Don’t See a Support Group Near You?

Anyone can start a sarcoma support group. That anyone could be you! Sarcoma support groups are currently few and far between. More groups are needed around the world, and YOU can start one!

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Find practical help like housing and travel as well as additional organizations that offer support.

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