Support Groups

Anyone can start a sarcoma support group. That anyone could be You! Sarcoma support groups are currently few and far between and there is definitely a need for more groups. Find out more about starting a support group. Sarcoma Alliance Facebook Support Group

We have a very active, supportive community on our Facebook support group with several thousand members. Please note that this is an “open” group so anything you post may show up in the newsfeeds of friends and family. Some members choose to create a separate profile for this group (and other facebook support communities) for confidentiality purposes.

The Association of Cancer Online Resources, Inc. (ACOR) ACOR is a charitable organization, dedicated to providing information and support to cancer patients and those who care for them through Internet mailing lists and Web based resources. The SARCOMA list is just one of approximately 100 mailing lists within ACOR, and has 340 individual subscribers as of this writing. Subscribers are sarcoma survivors, caregivers, friends of those with sarcoma.

United States

Invisible
Arizona

Sarcoma Support Group at Arizona Cancer Center
The Arizona Cancer Center would like to invite you to our quarterly Tucson Area Sarcoma Support Group. We have formed an exciting partnership with The Arizona Cancer Center. All meetings will take place at the AZ Cancer Center, North Campus, 3838 N. Campbell Ave., Tucson – Room 1290, from 3:00 – 4:30 pm MST. This meeting is for sarcoma survivors and caregivers. All are welcome. Parking is free. Refreshments will be served.

This will be a great place to connect face to face with people affected by soft-tissue and bone sarcoma; to share valuable information and gather support. We hope that you can join us.
The quarterly meetings will take place in mid January, April, July, and October. Detailed information will be sent to you – upon request.

For more information, please call oncology social worker, Jill Winter at (520) 694-0845 or [email protected]

California

Los Angeles

Cancer Support Center LA cancersupportla.org Support groups, individual counseling, healthy lifestyle classes, educational workshops, children/teen/family support, and social programs provided at no-cost. 1990 South Bundy Drive, Suite 100 Orientation meeting required – Tue. 6 – 7pm or Fri. 10 – 11am [email protected]

Patient and Caregiver Support Group at Saint John’s Health Center No RSVP Required. Free Valet Parking Available with Validation. 2121 Santa Monica Blvd., Santa Monica, CA 90404 1st & 3rd Thursdays of Each Month, 6-8PM For additional information contact: Cherie Nassi, LMFT – 310.314.2555 ext. 2602, [email protected]

Attention Los Angeles Area Sarcoma Patients, Survivors and Caregivers, the Sarcoma Alliance would like to invite you to our monthly Los Angeles Area support group. We have formed an exciting partnership with The Cancer Support Community (South Bay Cities) in Redondo Beach. All meetings will take place at The Cancer Support Community (http://www.cancersupportredondobeach.org/). This meeting is for sarcoma survivors and caregivers. All are welcome. The Cancer Support Community is located at 109 West Torrance Blvd, Redondo Beach, CA 90277; telephone 310-376-3550. The group meets the second Saturday each month from 11AM- 1PM. If you have any questions contact the Alliance at [email protected]

Monthly Sarcoma Support Group at the Samuel Oschin Cancer Center. Refreshments will be served. Meets 3rd Wednesday of each month from 12:00 – 1:30pm at the Samuel Oschin Cancer Center Mezzanine Conference Room, 8700 Beverly Blvd., Los Angeles 90048. RSVP to 310-423-0638.

Florida

University of Miami Health System The Sarcoma support group will provide education and support for patients affected by sarcoma. It is open to sarcoma patients and their loved ones. Meetings take place once a month from 10:30AM to 12:00PM in Sylvester Conference Room 1301 at 1475 NW 12 Avenue, Miami, FL 33136. Snacks will be provided and parking will be validated. Please check Sylvester.Org for the most up to date information or contact the Sarcoma Social Worker, Marlene Morales, LCSW,MCAP, ICADC at 305-243-4193 for more information.

Georgia

Emory Winship Cancer Institute’s Young Adults With Cancer Support Group. This is a one-hour creative process support group open to all cancer diagnoses for young adult patients (ages 18-40). The first meetings are on the first Tuesday of each month from 5:30-6:30pm in the Glenn Building at Emory University Hospital Midtown (PDF with directions and building map). RSVP Required. For RSVPs or inquiries, please contact facilitators Russell Brown or Nikita Burke at:

https://winshipcancer.emory.edu/patient-care/living-with-cancer/support-groups.html

Illinois

Sarcoma Support Group at Mercy Hospital & Medical Center Support group for sarcoma patients, spouses, family members, and caregivers. The group meets on Saturdays at 11:00am, 12th Floor Conference Room, Mercy Hospital & Medical Center, 2525 S. Michigan Ave. For more information and to register, please contact Maricel Tenorio at 312-567-2044.

Sarcoma Networking Group The Sarcoma Cancers Networking Group provides an opportunity to meet with others experiencing a sarcoma diagnosis and their caregivers. The purpose of this group is to exchange information, strategies for making decisions, and support for navigating the cancer experience. This group is offered at no cost for anyone with a sarcoma diagnosis and their caregivers. The group meets bi-monthly on Saturdays from 11:00 am – 1:00 pm at Wellness House, 131 North County Line Road Hinsdale, IL 60521. For additional information, contact Ellen Nieman at [email protected] or 630-654-5198. https://wellnesshouse.org/Program/sarcoma-networking-group/

Massachusetts

Massachusetts: Sarcoma Support Group at Dana-Farber Cancer Institute This group provides mutual support and education for sarcoma patients and their loved ones. The group serves to foster connections between patients to decrease feelings of isolation. The group meets the first Monday of each month, 12:30-1:30pm. Parking is free and validated in the Smith Garage (located at One Jimmy Fund Way). Registration required. Call Molly Williamson MSW, LICSW at 617-582-9617 to register or for more information. 

Nebraska

Nebraska: Sarcoma and GIST Support Group in Omaha This is a program that provides education and support for patients with Sarcoma or GIST and their families. It meets 6 – 7 pm, the 2nd Thursday of every other month, at Bergan Mercy Cancer Center in Omaha. For more information please contact Lori Simpson at 402-398-6267.

New York

Virtual Sarcoma Support Group hosted by Memorial Sloan Kettering Hospital. This is a live, online support and education group for people undergoing treatment for sarcoma. It offers them the opportunity to discuss issues that may arise through the course of their treatment, to share their personal experiences, and to provide practical and emotional support for one another. Discussions are led by social workers and meetings occur every third Wendesday of the month from 12-1pm EST. The group is open to everyone, though registration is required to join. Email [email protected] to learn more and/or to register.

Upcoming Meetings:

Wednesday, September 18, 2019 – 12:00 PM
Wednesday, October 16, 2019 – 12:00 PM
Wednesday, November 20, 2019 – 12:00 PM
Wednesday, December 18, 2019 – 12:00 PM
Ohio

Sarcoma Support Group at The James Cancer Hospital at Ohio State University This support group in Columbus, Ohio started in June 2006 and is open to individuals with sarcoma and/or their caregivers. The group meets the last Tuesday of each month from 6:00pm to 7:30pm (no meetings in December). Stephanie Spielman Comprehensive Breast Center, Second Floor, Rm. 2002, 1145 Olentangy River Rd., Columbus, Ohio 43212. For more information please contact JamesCare for Life at 614-293-6428. 

South Carolina

Sarcoma Support Group in Greenville, South Carolina Meetings are held every 4th Monday of the month at 7PM. The meeting place is the library at Edward Road Baptist Church at 1050 Edwards Road, Greenville, SC. For current information contact Beth Lagrange at 864-254-0333 or email at [email protected]

South Carolina: South Carolina Virtual Community
Sarcoma Warriors of the Upstate. A virtual community of sarcoma fighters that that never leaves a man behind. Warrior members are instantly welcomed into a network of other current and past sarcoma fighters and their families, friends, and support groups. Support comes from the emotional web that is weaved with fellow survivors and for those in need, there is limited and targeted financial support as well. For more information about the group or our community activities, please visit and explore http://sarcomawarriors.org and join our family on Facebook to keep up with all of the latest news and events.

Wisconsin

Sarcoma Support Group in Central Wisconsin
A sarcoma support group in Central Wisconsin met for the first time on Wednesday June 16, 2004. Ongoing meetings take place at the American Cancer Society Hope Lodge in Marshfield, WI at the downstairs meeting room, from 6-7 pm, on the 3rd Wednesday of each month. Richard Nesbitt will be running the support group.

International

Invisible
United Kingdom

Web-Based Support Groups

Invisible
Chondro and Chordomasarcoma
Leiomyosarcoma

LMS – National Leiomyosarcoma Foundation                        https://www.facebook.com/NationalLMSFoundation/

Leimyosarcoma Support & Direct Research Foundation (LMSDR) Facebook Group
https://www.facebook.com/groups/lmsdr/

Sarcoma Support

 

The Association of Cancer Online Resources (ACOR) is a charitable organization, dedicated to providing information and support to cancer patients and those who care for them through Internet mailing lists and Web based resources.                                                          http://listserv.acor.org/scripts/wa-ACOR.exe?INDEX

CancerCare Patient Support Group
https://www.cancercare.org/support_groups/159-sarcoma_patient_support_group

Memorial Sloan Kettering Online Support Group
http://www.mskcc.org/events/support-meeting/sarcoma-support-group

Smart Patients
https://www.smartpatients.com/