Anyone can start a sarcoma support group. That anyone could be You! Sarcoma support groups are currently few and far between and there is definitely a need for more groups. Find out more about starting a support group. Sarcoma Alliance Facebook Support Group We have a very active, supportive community on our Facebook support group with several thousand members. Please note that this is an “open” group so anything you post may show up in the newsfeeds of friends and family. Some members choose to create a separate profile for this group (and other facebook support communities) for confidentiality purposes. The Association of Cancer Online Resources, Inc. (ACOR) ACOR is a charitable organization, dedicated to providing information and support to cancer patients and those who care for them through Internet mailing lists and Web based resources. The SARCOMA list is just one of approximately 100 mailing lists within ACOR, and has 340 individual subscribers as of this writing. Subscribers are sarcoma survivors, caregivers, friends of those with sarcoma.
Sarcoma Support Group at Arizona Cancer Center
The Arizona Cancer Center would like to invite you to our quarterly Tucson Area Sarcoma Support Group. We have formed an exciting partnership with The Arizona Cancer Center. All meetings will take place at the AZ Cancer Center, North Campus, 3838 N. Campbell Ave., Tucson – Room 1290, from 3:00 – 4:30 pm MST. This meeting is for sarcoma survivors and caregivers. All are welcome. Parking is free. Refreshments will be served.
This will be a great place to connect face to face with people affected by soft-tissue and bone sarcoma; to share valuable information and gather support. We hope that you can join us.
The quarterly meetings will take place in mid January, April, July, and October. Detailed information will be sent to you – upon request.
For more information, please call oncology social worker, Jill Winter at (520) 694-0845 or [email protected]
Attention Los Angeles Area Sarcoma Patients, Survivors and Caregivers
The Sarcoma Alliance would like to invite you to our monthly Los Angeles Area support group. We have formed an exciting partnership with The Cancer Support Community (South Bay Cities) in Redondo Beach. All meetings will take place at The Cancer Support Community (http://www.cancersupportredondobeach.org/). This meeting is for sarcoma survivors and caregivers. All are welcome. The Cancer Support Community is located at 109 West Torrance Blvd, Redondo Beach, CA 90277; telephone 310-376-3550. The group meets the second Saturday each month from 11AM- 1PM. If you have any questions contact the Alliance at [email protected]
Monthly Sarcoma Support Group at the Samuel Oschin Cancer Center
Meets 3rd Wednesday of each month from 12:00 – 1:30pm at the Samuel Oschin Cancer Center Mezzanine Conference Room, 8700 Beverly Blvd., Los Angeles 90048 . RSVP to 310-423-0638. Refreshments will be served.
Support Group at Emory Hospital in Atlanta
Meetings generally third Wednesday of the month at Emory’s midtown location at 550 Peachtree Street NE, Atlanta, GA 30308
Sarcoma Support Group at Mercy Hospital & Medical Center
Support group for sarcoma patients, spouses, family members, and caregivers. The group meets on Saturdays at 11:00am, 12th Floor Conference Room, Mercy Hospital & Medical Center, 2525 S. Michigan Ave. Upcoming 2015 dates: March 28, June 13, September 12, December 12. For more information and to register, please contact Maricel Tenorio at 312-567-2044.
Massachusetts: Sarcoma Support Group at Dana-Farber Cancer Institute
This group provides mutual support and education for sarcoma patients and their loved ones. The group serves to foster connections between patients to decrease feelings of isolation. The group meets the first Monday of each month, 12:30-1:30pm. Parking is free and validated in the Smith Garage (located at One Jimmy Fund Way). Registration required. Call Larissa Hewitt, LICSW at 617-582-7548 to register or for more information.
Nebraska: Sarcoma and GIST Support Group in Omaha
This is a program that provides education and support for patients with Sarcoma or GIST and their families. It meets 6 – 7 pm, the 2nd Thursday of every other month, at Bergan Mercy Cancer Center in Omaha. For more information please contact Lori Simpson at 402-398-6267 or Peggy Jarrell at 402-354-4213
Virtual Sarcoma Support Group hosted by Memorial Sloan Kettering Hospital; Facilitator: Linda Mathew, LCSW, OSW-C
Date: Third Wednesday of each month; Time: 12:00–1:00 pm
Contact: Virtual Group Program
Details: Join MSK for a monthly for a live, online support group for people affected by soft-tissue and bone sarcoma. This group is designed to create a space for sarcoma patients to share valuable information and gather support as they face unique challenges from diagnosis to treatment. We will offer periodic speakers. It is open to MSKCC patients and non-MSKCC patients.
Email [email protected] for more information and to register.
Sarcoma Support Group at The James Cancer Hospital at Ohio State University
A new sarcoma support group in Columbus, Ohio started in June, 2006. The group meets the last Tuesday of each month from 6:00pm to 7:30pm. Martha Morehouse Plaza (The Ohio State University), 2050 Kenny Road, Suite 3300, Columbus, Ohio 43221. Patients, family members, friends are all welcome. For more information please contact: Martha Crist, RN, BSH, 614-293-4420 or [email protected]
Attention Greenville, South Carolina Support Group
A new Sarcoma Support Group in Greenville, South Carolina begins July 24, 2006. Meetings will be held every 4th Monday of the month at 7PM. The meeting place is the library at Edward Road Baptist Church at 1050 Edwards Road, Greenville, SC. For current information contact Beth Lagrange at 864-254-0333 or email at [email protected]
South Carolina: South Carolina Virtual Community
Sarcoma Warriors of the Upstate. A virtual community of sarcoma fighters that that never leaves a man behind. Warrior members are instantly welcomed into a network of other current and past sarcoma fighters and their families, friends, and support groups. Support comes from the emotional web that is weaved with fellow survivors and for those in need, there is limited and targeted financial support as well. For more information about the group or our community activities, please visit and explore http://sarcomawarriors.org and join our family on Facebook to keep up with all of the latest news and events.
Sarcoma Support Group in Central Wisconsin
A sarcoma support group in Central Wisconsin met for the first time on Wednesday June 16, 2004. Ongoing meetings take place at the American Cancer Society Hope Lodge in Marshfield, WI at the downstairs meeting room, from 6-7 pm, on the 3rd Wednesday of each month. Richard Nesbitt will be running the support group.
United Kingdom http://www.sarcoma.org.uk/support-groups
Web-Based Support Groups
Chordoma Support Groups
Chondrosarcomama Support Group
Memorial Sloan Kettering Online Support Group
Stage 4 Cancer Forum
This site was started by a woman in Sweden who was diagnosed with synovial sarcoma in September 2004. She has gone through 12 radical surgeries, 18 months of chemotherapy treatment and some 80 radiotherapy sessions since then. You can read her story at http://stage4cancerforum.com/story/veronicas-story/#more-56. She also has put together a website for support http://stage4cancerforum.com/
Uterine Leiomyosarcoma and Hormone Therapy
Uterine Leiomyosarcoma and Hormone Therapy Discussion Group
Rare Vascular Cancers including Angiosarcomas