Youth with Sarcoma

Adolescents and young adults (AYA) with pediatric sarcoma face more than the usual challenge from cancer. In cancer treatment, adolescents and young adults are people between age 15 and 39.

One of the challenges is that it is studied less than sarcoma in children and older adults. But the major challenge for youth with sarcoma is how to get the best treatment.

On the one hand, pediatric oncologists and children’s hospitals are well-equipped to work with pediatric sarcoma—but in children and their families with their age-specific needs. On the other hand, cancer treatment centers for adults provide a more age-appropriate environment for adolescents and young adults—but might not have the same level of expertise in pediatric sarcoma.

The Sarcoma Alliance and its members are here to help you meet those challenges. Resources In order to support adolescents and young adults with sarcoma, the Sarcoma Alliance has assembled resources specific to their challenges and opportunities.

Recommendations on diagnosis and treatment of pediatric sarcoma in adolescents and young adults.

How to meet up online with other adolescents and young adults with sarcoma and other types of cancer.

Where to receive age-appropriate treatment.

Information on sarcoma subtypes, how to contact sarcoma support groups, and how to find out about other programs.

Pediatric Sarcoma
Pediatric sarcomas are of three types. They are called Pediatric Sarcoma because of their greater prevalence among children compared to adults. However, they can occur in young people and adults as well.

Rhabdomyosarcomas are tumors in the skeletal (striated) muscle and are one of the most common types of soft tissue sarcoma. Rhabdomyosarcomas are often widely spread by the time a diagnosis is made. Treatment generally consists of surgery and combination chemotherapy (that is, more than one drug is used).

For more information on rhabdomyosarcoma, visit:

National Cancer Institute, Childhood Rhabdomyosarcoma

Liddy Shriver Sarcoma Initiative, Rhabdomyosarcoma (RMS)

CureSearch, Rhabdomyosarcoma

Ped-Onc Resource Center, Rhabdomyosarcoma.

Osteosarcoma is the most common type of bone cancer. It typically affects adolescents and young adults during periods of rapid bone growth. The knee is the most common site for osteosarcomas. Surgery is the primary treatment.

For more information on osteosarcoma, visit:

National Cancer Institute, Bone Cancer

Liddy Shriver Sarcoma Initiative, Osteosarcoma

CureSearch, Osteosarcoma

Ped-Onc Resource Center, Bone Cancers.

Ewing’s Sarcoma
Ewing’s Sarcoma is cancer that occurs principally in bone, most commonly affecting the long bones of the arm and leg, the pelvis, and the ribs. However, Ewing’s Sarcoma can also occur in soft tissues and as such is considered a “family” of cancers that include Peripheral Neuroectodermal Tumor (PNET). It is more common in girls than boys and is rare among Africans and African-Americans. Multi-drug chemotherapy is the primary treatment in association with surgery and radiation.

For more information on Ewing’s sarcoma, visit:

National Cancer Institute, Ewing Family of Tumors

Liddy Shriver Sarcoma Initiative, Ewing’s Sarcoma Family of Tumors (ESFT)

CureSearch, Ewing Sarcoma

Ped-Onc Resource Center, Bone Cancers.

Soft Tissue Sarcoma

CureSearch, Soft Tissue Sarcoma