Support Groups

Anyone can start a sarcoma support group. That anyone could be You! Sarcoma support groups are currently few and far between and there is definitely a need for more groups. Find out more about starting a support group.

The Association of Cancer Online Resources, Inc. (ACOR)
ACOR is a charitable organization, dedicated to providing information and support to cancer patients and those who care for them through Internet mailing lists and Web based resources. The SARCOMA list is just one of approximately 100 mailing lists within ACOR, and has 340 individual subscribers as of this writing. Subscribers are sarcoma survivors, caregivers, friends of those with sarcoma.

By State

Arizona
Sarcoma Support Group at Arizona Cancer Center
The Arizona Cancer Center would like to invite you to our quarterly Tucson Area Sarcoma Support Group. We have formed an exciting partnership with The Arizona Cancer Center. All meetings will take place at the AZ Cancer Center, North Campus, 3838 N. Campbell Ave., Tucson – Room 1290, from 3:00 – 4:30 pm MST. This meeting is for sarcoma survivors and caregivers. All are welcome. Parking is free. Refreshments will be served.

This will be a great place to connect face to face with people affected by soft-tissue and bone sarcoma; to share valuable information and gather support. We hope that you can join us.
The quarterly meetings will take place in mid January, April, July, and October. Detailed information will be sent to you – upon request.

For more information, please call oncology social worker, Jill Winter at (520) 694-0845 or jwinter@uncaz.edu

California
Attention Los Angeles Area Sarcoma Patients, Survivors and Caregivers
The Sarcoma Alliance would like to invite you to our monthly Los Angeles Area support group. We have formed an exciting partnership with The Cancer Support Community (South Bay Cities) in Redondo Beach. All meetings will take place at The Cancer Support Community ( http://www.cancersupportredondobeach.org/  ). This meeting is for sarcoma survivors and caregivers. All are welcome. The Cancer Support Community is located at 109 West Torrance Blvd, Redondo Beach, CA  90277; telephone 310-376-3550.  The group meets the second Saturday each month from 11AM- 1PM. If you have any questions contact the Alliance at info@sarcomaalliance.org.

Georgia
Support Group at Emory Hospital in Atlanta
Meetings generally third Wednesday of the month at Emory’s midtown location at 550 Peachtree Street NE, Atlanta, GA  30308; telephone 404-686-4411.

Illinois
Sarcoma Support Group at Mercy Hospital & Medical Center
Support group for sarcoma patients, spouses, family members, and caregivers. The group meets on Saturdays at 11:00am, 12th Floor Conference Room, Mercy Hospital & Medical Center, 2525 S. Michigan Ave. Upcoming dates: March 29 will meet in 12th floor Great Room, June 14, September 13, December 13. For more information and to register, please contact Maricel Tenorio at 312-567-2044.

Massachusetts
Massachusetts: Sarcoma Support Group at Dana-Farber Cancer Institute
Support group for sarcoma patients and family members. The group meets the second Monday of each month, 12:30-1:30pm, in the Dana Building, Room 1615. Parking is validated in the Smith Garage (located at One Jimmy Fund Way). Registration is required. Call Lirissa Hewitt, LCSW at 617-582-7548 to register or for more information. Parking is free for participants in the Dana-Farber Yawkey Building garage.

Nebraska
Nebraska: Sarcoma and GIST Support Group in Omaha
This is a program that provides education and support for patients with Sarcoma or GIST and their families. It meets  6 – 7 pm, the 2nd Thursday of every other month, at Bergan Mercy Cancer Center in Omaha.  For more information please contact Lori Simpson at 402-398-6267 or Peggy Jarrell at 402-354-4213

New York

Virtual Sarcoma Support Group hosted by Memorial Sloan Kettering Hospital; Speakers: Linda Mathew, LMSW, OSW-C

Date: Third Wednesday of each month; Time: 12: 00 – 1:00 pm

Contact: Virtual Group Program

Details: Join MSK for  a monthly for a live, online support group for people affected by soft-tissue and bone sarcoma.  This group is designed to create a space for sarcoma patients to share valuable information and gather support as they face unique challenges from diagnosis to treatment.  We will offer periodic speakers.   It is open to MSKCC patients and non-MSKCC patients.

Email virtualgroups@mskcc.org for more information and to register.

Ohio
Sarcoma Support Group at The James Cancer Hospital at Ohio State University
A new sarcoma support group in Columbus, Ohio started in June, 2006. The group meets the last Tuesday of each month from 6:00pm to 7:30pm. Martha Morehouse Plaza (The Ohio State University), 2050 Kenny Road, Suite 3300, Columbus, Ohio 43221. Patients, family members, friends are all welcome. For more information please contact: Martha Crist, RN, BSH, 614-293-4420 or martha.crist@osumc.edu.

South Carolina
Attention Greenville, South Carolina Support Group
A new Sarcoma Support Group in Greenville, South Carolina begins July 24, 2006. Meetings will be held every 4th Monday of the month at 7PM. The meeting place is the library at Edward Road Baptist Church at 1050 Edwards Road, Greenville, SC. For current information contact Beth Lagrange at 864-254-0333 or email at ben.lagrange@alumni.clemson.edu

South Carolina: South Carolina Virtual Community
Sarcoma Warriors of the Upstate. A virtual community of sarcoma fighters that that never leaves a man behind. Warrior members are instantly welcomed into a network of other current and past sarcoma fighters and their families, friends, and support groups. Support comes from the emotional web that is weaved with fellow survivors and for those in need, there is limited and targeted financial support as well. For more information about the group or our community activities, please visit and explore http://sarcomawarriors.org and join our family on Facebook to keep up with all of the latest news and events.

Wisconsin
Sarcoma Support Group in Central Wisconsin
A sarcoma support group in Central Wisconsin met for the first time on Wednesday June 16, 2004. Ongoing meetings take place at the American Cancer Society Hope Lodge in Marshfield, WI at the downstairs meeting room, from 6-7 pm, on the 3rd Wednesday of each month. Richard Nesbitt will be running the support group.

International Support Groups

United Kingdom http://www.sarcoma.org.uk/support-groups

Web-Based Support Groups

Chordoma Support Group
http://ca.groups.yahoo.com/group/Chordoma_Support_Group/

Chondrosarcomama Support Group
http://www.chondrosarcoma-support.org

Uterine Leiomyosarcoma and Hormone Therapy Discussion Group
http://health.groups.yahoo.com/group/ULMS-HormoneTherapy/

Rare Vascular Cancers including Angiosarcomas
http://www.heardsupport.org/index.html

Stage 4 Cancer Forum
This site was started by a woman in Sweden who was diagnosed with synovial sarcoma in September 2004. She has gone through 12 radical surgeries, 18 months of chemotherapy treatment and some 80 radiotherapy sessions since then. You can read her story at http://stage4cancerforum.com/story/veronicas-story/#more-56. She also has put together a website for support http://stage4cancerforum.com/

Memorial Sloan Kettering Online Support Group
http://www.mskcc.org/events/support-meeting/sarcoma-support-group