Greetings from The Sarcoma Alliance!
The Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and support.
Suzanne Leider founded the Sarcoma Alliance in 1999 in the living room of her home with the mantra “guidance, education, and support” in her head. After four years she finally met her first sarcoma survivor (Wendy Sommers), and she realized that sarcoma patients fall into a great void.. Suzanne decided 4 years was too long to wait to meet a fellow survivor and decided to do something about it. With the help of friends, family and volunteers, The Sarcoma Alliance was born. We are a nonprofit 501C(3) organization.
As a nurse, Suzanne focused on the care of the individual and quality of life. Her dream was for people with sarcoma to have the tools to fight this disease on a physical, mental, and psychological level. As a patient and a healthcare provider, she understood the difficulties of navigating our healthcare system. She knew that creating a gathering place for those touched by sarcoma would diminish the isolation of this diagnosis. The Sarcoma Alliance has created a community that can no longer be ignored.
Sarcoma does not discriminate by age, gender, or race. As a rare diagnosis, this is a community who has special needs and requires special attention. Survival depends upon it. The Sarcoma Alliance is working to address the needs of this special community and to get you the necessary resources and attention you deserve.
The Sarcoma Alliance is striving to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education and support. Together we can make a difference.
All services provided by The Sarcoma Alliance are provided free of charge.
Guidance: A sarcoma diagnosis can be distressing and confusing. As sarcoma survivors, we can help guide you and your loved ones through the complex maze of medical providers, treatment options, and information sources available to you.
Education: Few people know the ins and outs of cancer symptoms, diagnosis, treatment, and clinical research before they find out they have a sarcoma. We can bring you up to speed on the basics, refer you to authoritative publications and websites for further study, and help you get plugged into the various support networks already established for adults and children with sarcoma.
Support: It can be a lonely experience finding out you have a sarcoma. We can link you up with other people facing similar challenges. We believe that the most successful patients are educated and connected to others for social support. The Alliance is creating a peer-to-peer webpage and a “biographies” page to allow patients and their loved ones to share their experiences with others dealing with the same diagnosis.
Please contact us with any personal biographies and photographs, articles, websites or other resources we should post on our site. You can reach the Alliance via e-mail, phone, fax or mail if you have questions or concerns. We look forward to hearing from you.