by Sarcoma Alliance | Stories
The day my life changed forever. The morning of April 14th 2016. I went in for a scheduled hysterectomy and was faced with so much more. Let’s rewind a few months prior. I had a few appointments with my OBGYN doctor. I was experiencing quite a bit of abdominal...
by Sarcoma Alliance | Stories
On an uneventful Sunday morning in April, my husband Matt and I had slept in and were lying in bed with his hand on my thigh. “What is this lump here?” he asked. I didn’t know and rubbed my hand along my thigh, pressing down enough to feel it. It felt like a knotted...
by Sarcoma Alliance | Stories
A friend wrote a song about my cancer to the tune of “Jambalaya (on the Bayou).” Bring on the silly songs and jokes! What’s the point of all this suffering if we can’t laugh occasionally? Plus, I know my cancer has a musical name: leiomyosarcoma, pronounced...
by Sarcoma Alliance | Stories
In December of 1965, after I had just turned 3, my mother started noticing blood in my urine. A trip to our local family doctor would change all of our lives. My parents were told that I had a very rare form of bladder cancer with a 10 percent survival rate. I...
by Sarcoma Alliance | AACR, childhood, clinical trials, immunotherapy
By Suzie SiegelAs a patient who last took biology 40 years ago, much of what was presented at the American Association for Cancer Research’s “Basic Science of Sarcomas” conference flew over my head. But even if you and I don’t know what a TLR4 agonist GLA-SE is, I...
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