Sully's Run
2022-10-22 08:00 - 14:00 (America/New_York) | Riverbend Park, 9060 West Indiantown Road, Jupiter, FL, 33478, United States
Join Sully’s Run
A 5K race in honor of Lauren Sullivan
When: October 22, 2022
Where: Riverbend Park, West Indiantown Road, Jupiter, FL

Held in memory of Lauren Sullivan, who died of Follicular Dendritic Cell Sarcoma, Sully’s Run is a beautiful 5-kilometer race course in Riverbend Park in Jupiter, Florida. The race event will also include live music, food trucks, live raffles, and much more. Sully’s Run is brought to you by the Pearl Mae Foundation, for which Lauren Sullivan was the founding Executive Director. Join the event as a participant or come out to show your support and cheer everyone on!

Race proceeds benefit the Sarcoma Alliance and the Pearl Mae Foundation.
Visit the following website for more information about the race and registration.

The Pearl Mae Foundation focuses on helping Senior Citizens in Palm Beach County, Florida.

16th Annual Putts for Ped
2022-10-07 | Rancocas Golf Club, 12 Club Ridge Lane, Willingboro, NJ, 08046, United States
Join us for a Best Ball Scramble Golf Outing in memory of Michael John Pedrick.
The 16th Annual Putts for Ped golf fundraiser will be hosted by Sarcoma Alliance Board President Jennifer Nellany.
Location: Rancocas Golf Club in Willingboro, New Jersey When: Friday, October 7, 2022. Registration is 11:30 am-12:30 pm and shotgun starts at 1 pm.
For information about Rancocas Golf Club, visit www.rancocasgc.com.For more information about the outing, for sponsorship details, or to register, please email Jennifer Nellany at jnellany@yahoo.com.
Putts for Ped 2022 Flyer

13th Annual Wendy Walk
2022-09-18 10:00 - 13:00 (America/Los_Angeles) | Barnard Linear Way Park, 2440 Barnard Way, Santa Monica, CA, 90405, United States
Join us for this year’s Wendy Walk

When: September 18, 2022
Where: Barnard Way Linear Park, Santa Monica and Virtually
Move with us at this year’s 13th Annual Wendy Walk! Hosted by our partner, Wendy Walk, this event is dedicated to raising funds to support sarcoma patients and research. This year’s Wendy Walk will take place both in Santa Monica, California and virtually. If you choose to walk with us in spirit, you can also choose your own course, start time, and walking buddies.
We are honored to have our very own fundraising team for this year’s Wendy Walk. Join Team Sarcoma Alliance in Santa Monica or from anywhere and help us to raise funds to support sarcoma patients seeking second opinions consultations with sarcoma experts.

Support Team Sarcoma Alliance!
Visit our event page for more information about the walk and registration.

More About Wendy Walk:
“The first time we heard the word ‘sarcoma’ was when our mom, Wendy, was diagnosed with liposarcoma in 2008. We couldn’t wrap our heads around the severe lack of viable treatment options and research funds for this rare cancer. We lost our mom in 2013, but not before she was able to participate in a new annual tradition, Wendy Walk. We’ve raised over four million dollars for sarcoma research and continuously strive to ensure nobody has to face sarcoma alone.”
– Ali, Matt, & Jackie Landes

Sarcoma Exchange 2022
2022-07-22 - 2022-07-24 | Hyatt Regency Los Angeles International Airport, 6225 W Century Blvd., Los Angeles, CA, 90045, United States
Learn about the Sarcoma Exchange 2022!

When: July 22-24, 2022
Where: Hyatt Regency LAX, Los Angeles, CA and virtually
The Sarcoma Exchange is an educational event dedicated to sarcoma patients and the people who support them. This special meeting is designed for sarcoma patients, survivors, co-survivors, caregivers, patient advocates, and medical specialists to connect with one another and to exchange information about current therapies and available resources. Some of the topics covered in this year’s event will include immunotherapy, integrative medicine, and mental health. Click here to view the schedule and learn more.

Our community’s health and safety are critical to us. Given the global COVID-19 pandemic we have made the decision to require full vaccination for those who want to attend the 2022 Sarcoma Exchange in person, with limited exceptions. To protect everyone’s health and well-being, those who are not fully vaccinated are encouraged to participate virtually. We will also abide by Los Angeles Country’s social distancing and masking mandates if any are in effect at that time. Please prepare accordingly. We will continue to monitor the status of the pandemic and will notify you should we have to make any additional event adjustments. Thank you for your understanding.

Learn More
Review the Event AgendaWe are proud to have a lineup of some amazing speakers for this year’s event. Click the link above to see who will be speaking and the topics they’ll discuss.

Watch Last Year’s EventCurious about topics that have previously been covered in the Sarcoma Exchange? Watch our YouTube playlist with recordings from last year’s event.

Spread the word!
It’s easy to share this event with your community with our printable event flyer.
Special thanks to our 2022 Sarcoma Exchange Sponsors:
Click the edit button to add your testimonial. If you are interested in sponsoring the Sarcoma Exchange, please contact Kalyse Engebretson at kengebretson@sarcomaalliance.org.

Sip to Support the Sarcoma Alliance
2022-06-27 - 2022-07-31 | Hyatt Regency LAX, 6225 W Century Blvd, Los Angeles, CA, 90045, United States
Share Wine. Give Hope.
When: June 27th – July 31st 2022
Looking for a fun way to give back this Sarcoma Awareness Month? Look no further. We’ve partnered with ONEHOPE Wine and their incredible entrepreneur, Jessica Pajak, to bring you a special way to support the Sarcoma Alliance this summer and beyond.

Sip soundly knowing each glass supports the sarcoma community.
When you buy ONEHOPE Wine, 10% of your purchase—plus a match from the Pajak family—will go to the Sarcoma Alliance.

About the Pajak Family

They’re changing the world one bottle at a time. Each year, 17,000 people in the U.S. are diagnosed with sarcoma. At just six weeks old, Emma Pajak became one of them. After one year and more medical procedures than many have in a lifetime, Emma is now a Ewing sarcoma survivor. Grateful for all of the support they received throughout their journey, Emma’s family sells wine and raises funds to give back. They’re generously matching 10% of each purchase of ONEHOPE Wine you make to support other people facing sarcoma.

Spread the word!
It’s easy to share this fundraising event with your community using our lovely one-page flyer or short and sweet graphic.

Sarcoma Alliance Networking Group
2021-12-11 11:00 - 13:00 (America/Los_Angeles) | Hyatt Regency LAX, 6225 W Century Blvd, Los Angeles, CA, 90045, United States
Sarcoma Alliance Networking Group

When: 2nd Saturday of the month, 11am-1pm Pacific Time
Where: Zoom
Who: Residents of California or Florida
Do you or a loved one have a diagnosis of sarcoma? Are you feeling alone with this rare type of cancer? Would you like to meet other people facing similar issues? There are strength in numbers. Join the Sarcoma Alliance’s networking group, run by the Cancer Support Community of Redondo Beach California and facilitated by Jill Gray, MA, LMFT! Sessions are free of charge and all are welcome. This free drop-in group is for newly diagnosed sarcoma patients, those in treatment, survivors, caregivers, and family members. To join this online sarcoma group, contact info@cscrb.org.

Learn More!
Contact info@cscrb.org to join or learn more about this group.

15th Annual Putts for Ped
2021-09-24 | Rancocas Golf Club, 12 Club Ridge Lane, Willingboro, NJ, 08046, United States
SAVE THE DATE to join us for a Best Ball Scramble Golf Outing in memory of Michael John Pedrick.
The 15th Annual Putts for Ped golf fundraiser will be hosted by Sarcoma Alliance Board President Jennifer Nellany.
Location: Rancocas Golf Club in Willingboro, New Jersey When: Friday, September 24, 2021. Registration is 10 am-12 Noon and shotgun start at 1 pm.
For information about Rancocas Golf Club, visit www.rancocasgc.com.For more information about the outing, for sponsorship details, or to register, please email Jennifer Nellany at jnellany@yahoo.com.

12th Annual Wendy Walk
2021-09-19
Join us for this year’s Wendy Walk

When: September 19, 2021
Participate from wherever you are in the 12th Annual Wendy Walk! Hosted by our partner, Wendy Walk, this event is dedicated to raising funds to support sarcoma patients and research. This year’s Wendy Walk will take place on your terms. You get to choose your own course, start time, and walking buddies.
We are honored to have our very own team for this year’s Wendy Walk. Join Team Sarcoma Alliance from anywhere and help us to raise funds to support sarcoma patients seeking second opinions consultations with sarcoma experts.

Register to walk with Team Sarcoma Alliance!
Visit our event page for more information about the walk and registration.

More About Wendy Walk:
“The first time we heard the word ‘sarcoma’ was when our mom, Wendy, was diagnosed with liposarcoma in 2008. We couldn’t wrap our heads around the severe lack of viable treatment options and research funds for this rare cancer. We lost our mom in 2013, but not before she was able to participate in a new annual tradition, Wendy Walk. We’ve raised over four million dollars for sarcoma research and continuously strive to ensure nobody has to face sarcoma alone.”
– Ali, Matt, & Jackie Landes

Sarcoma Exchange 2021
2021-09-11 - 2021-09-12 | Hyatt Regency LAX, 6225 W Century Blvd, Los Angeles, CA, 90045, United States
Learn about the Sarcoma Exchange 2021!

When: September 11-12, 2021
Where: Online via Zoom
*Please note that, given the COVID-19 pandemic’s evolution, this year’s event is now fully virtual.*

The Sarcoma Exchange is an educational event dedicated to sarcoma patients and the people who support them. This special meeting is designed for sarcoma patients, survivors, co-survivors, caregivers, patient advocates, and medical specialists to connect with one another and to exchange information about current therapies and available resources. Some of the topics covered in this year’s event will include pediatric sarcoma, surgery, and targeted therapies. Click here to view the schedule and learn more.
The health and safety of our community is very important to us. We have consulted with physicians and our partners and decided, due to the rise in COVID-19 cases and the Delta variant, the Sarcoma Exchange will now be a fully virtual event. Thank you for your understanding.

Learn More
Review the Event AgendaWe are proud to have a lineup of some amazing speakers for this year’s event. Click the link above to see who will be speaking and the topics they’ll discuss.

Watch Last Year’s EventCurious about topics that have previously been covered in the Sarcoma Exchange? Watch our YouTube playlist with recordings from last year’s event.

Spread the word!
It’s easy to share this event with your community with our printable event flyer.
Special thanks to our 2021 Sarcoma Exchange Sponsors:
Click the edit button to add your testimonial. If you are interested in sponsoring the Sarcoma Exchange, please contact Alyssa O’Driscoll at aodriscoll@sarcomaalliance.org.

26th Annual Waterman Challenge
2021-07-10 | Swami’s Beach Park, Swami's Beach, Encinitas, California, 92024
Join the Waterman Challenge
A paddleboard race from Swami’s Beach to Windansea Beach
When: July 10, 2021
Where: Swami’s Beach (Encinitas, California) to Windansea Beach (La Jolla, California)

The Waterman Challenge is a challenging 15-mile open ocean course down the coast of San Diego, California from Swami’s to Windansea Beach—the longest continuous running paddleboard race in the world. The race start will consist of a water start outside the surfline at Swami’s Beach Park and the finish will be at the north end of Windansea Beach. This event continues to be a favorite among traditional paddlers with its challenging course and the waterman spirit shared by all of the participants. The Waterman Challenge is brought to you by North County Paddle Events (NCPE). Join the event as a participant or come out to show your support and cheer everyone on!

Race proceeds benefit the Sarcoma Alliance and Just In Time For Foster Youth
Please note that all race participants must pre-register.
Visit the Waterman Challenge’s website for more information about the race and registration.

The Waterman Challenge supports Ocean of Hope, a team of competitive ocean paddlers who race to raise funds and awareness for the Sarcoma Alliance.

Sarcoma Exchange 2020
2020-10-03 - 2020-10-04 | Hyatt Regency LAX, 6225 W Century Blvd, Los Angeles, CA, 90045, United States
The Sarcoma Alliance presented the 3rd Sarcoma Exchange October 3-4, 2020 online. We wanted to keep everyone safe and decided that, due to the global COVID-19 pandemic, we should host the Sarcoma Exchange virtually for 2020.
The Sarcoma Exchange is an educational event for sarcoma patients, survivors, caregivers, loved ones, patient advocates, and medical specialists to exchange information about current therapies and available resources, and develop relationships with others in the sarcoma community.

You may view the video feeds from the 2020 Sarcoma Exchange here.

Below are presentation downloads:
Cancer/Sarcoma 101 – Gina D’Amato, MD
Sarcoma History Lesson – Frederick Eilber, MD
Sarcoma Pathology – Andrew Rosenberg, MD
The Importance of an Expert Opinion – Charles Forscher, MD
Targeted Therapy in Sarcoma – Jonathan Trent, MD, PhD
Clinical Trials In Sarcoma – Robert Maki, MD, PhD
The Use of Chemotherapy in Sarcoma – Robert Benjamin, MD
Surgical Treatment and Quality of Life – William Tseng, MD
Palliative Care – Steven Oppenheim, MD, PAAHPM
Radiation – Behrooz Hakimian, MD
Radiology – Shree R. Venkat, MD
Cancer Support Community – Shannon La Cava, Pys.D.
Imerman Angels – Jackie Herigodt
Sarcoma Alliance – Alyssa O’Driscoll
Nutrition – Diana Torres, MPH, RD, CSO
Roadmap to Resiliency – Arash Asher, MD

During the 2020 Sarcoma Exchange, we received many great questions that were answered live during the event. However, for those we weren’t able to get to during the program the responses are here.

Carolina Cup, Wrightsville Beach, NC, April 24-27
2014-04-24 - 2014-04-27 | Miami Airport Marriott, 1201 NW Le Jeune Road, Building A, Miami, 33126, United States
The 2014 Carolina Cup kicks off the race season with 4 courses: a kids race, the Harbor Island Recreational “fun” race, an Money Island open race and the dreaded Graveyard Elite Race. This is our forth year. In 2012, the Carolina Cup was the largest race on the East Coast with over 400 paddlers competing in the first day of races. In 2013, we had over 600. We’re also planning a number of really fun events that will make this a true stand up paddle destination event.
http://wrightsvillebeachpaddleclub.com/

Connective Tissue Oncology Society
2013-10-30 - 2013-11-02 | New York, NY, United States
CTOS is an international nonprofit organization for those who treat and/or research sarcomas. This year, the annual meeting will be in New York City. Arthur Beckert, the Alliance’s executive director, will attend to learn and make connections. At least one board member will attend at his/her own expense.

7th Annual Putts for Ped
2013-10-04
This year marks the seventy year of Putts for Ped a golf outing in memory of Michael John Pedrick for the benefit of the Sarcoma Alliance. Since its inception in 2007, Putts for Ped has raised 0ver $67,000 for the Sarcoma Alliance. It is a fun filled day beginning with registration 11:00-12:30 AM. Golf begins at 1:00 PM and is followed by a buffet dinner, Chinese auction and raffle. The cost is $100 for a round of golf and dinner; dinner only $25. For more information download the flyer. To register email jnellany@yahoo.com or bweyman@comcast.net

8th Annual Bob A. Ferretti 5k Walk/Run for Sarcoma
2013-09-29 08:00 - 23:30 (America/Los_Angeles) | Gloucester Township School, Corner of Blackhorse Pike and Marshall Ave., Blackwood, NJ, United States
At the age of 24 Bob Ferretti fell victim to the deadly disease of leiomyosarcoma on September 21st, 2005. The walk is in memory of Bob and dedicated to fighting the battle against this rare form of cancer. The school is located at the corner of Blackhorse Pike and Marshall Ave in Blackwood, NJ.

Paddle for Humanity, September 21, 2013, Newport Beach, CA
2013-09-21 08:00 - 17:00 (America/Los_Angeles)
Waterman’s Applied Science sponsors Paddle for Humanity, with races across the U.S. http://paddleforhumanity.org/ The Sarcoma Alliance is proud that Waterman’s has chosen us as one of its charity partners. At each race, we can distribute information and sell gear. If paddlers designate us as their favorite charity, we will get 20 percent of their registration fee. Net proceeds from the events also will be divided among the charity partners.
The results of the races will be applied to World Paddle Association (WPA) rankings. But there also will be an event for anyone who wants to try paddleboarding. Read more on the Deerfield Beach event. In addition to paddleboarders who will register for us, the Alliance is looking for volunteers who will staff a table there and at the other events. We want to inform the public and make a welcoming space for anyone whose life has been affected by sarcoma. Read more on our blog.

Paddle for Humanity, September 14, 2013, Austin, TX
2013-09-14 | Austin, TX, United States

U.S. Outrigger Championships
2013-09-07 | Avalon, Catalina Island, FL, United States
First held in 1959, the Catalina race is the ultimate outrigger canoe race in California. Teams from all over the state, plus Canada, Hawaii, Guam and Japan, come to compete in the two-day event. Women, junior and coed teams race from Newport Beach to Avalon on Saturday, and men and master coed teams race back on Sunday. Ocean of Hope team members from Lanakila Outrigger Canoe Club raise money through their own fundraising pages each year.
http://www.active.com/donate/OutriggerO2H2013
http://www.lanakilaocc.com
http://www.socaloutrigger.org/race-schedule/

Paddle for Humanity, August 31, 2013, Washington, D.C.
2013-08-31 | Washington, D.C. , United States

Catalina Classic Paddleboard Marathon
2013-08-25 | New York, NY, United States
The Ocean of Hope began at the Catalina Classic, with one paddler racing in honor of Sarcoma Alliance founder Suzanne Leider. Since 1999, scores of athletes have paddled the grueling 32 miles from Catalina Island to Manhattan Beach. People who raise $3,000 for the Alliance can have their names, or the name of a loved one, on a paddleboard. Go to Active.com to donate.
O2H will have tents with food, drink, merchandise and raffle tickets for sale on Manhattan Beach. Come out and support our team!
http://catalinaclassicpaddleboardrace.org

United States Lifesaving Association National Lifeguard and Junior Lifeguard Championships
2013-08-07 - 2013-08-10 | Manhattan Beach, Manhattan Beacy, CA, United States
This event features individual and team events including swimming, running, board paddling, surfboat rowing and surf ski paddleing. The event draws over 1,000 lifeguards, former lifeguards and junior lifeguards from around the nation. The Sarcoma Alliance will have a tent every day of the event. If you are interested in helping out, let us know.

Moloka'i 2 Oahu Paddleboard World Championships
2013-07-28 | Molokai, HI, United States
Both stand-up and traditional paddleboarding champions from around the world will gather in Hawaii to test their athletic ability in the most iconic event in the paddling community. The 32-mile crossing of the Ka’iwi Channel connects the islands of Moloka’i and Oahu. More than 2,300 feet deep, the channel creates a funnel effect that shoots billions of gallons of seawater between the islands each hour. Combine that with trade winds, and the seas can range from 8 to 15 feet on an average day and upwards of 20 feet on an extreme day. The Ocean of Hope will have competitors in the race, as well as an information tent in Honolulu. http://www.molokai2oahu.com/

Paddle for Humanity, July 20, 2013, Seattle, WA
2013-07-20 08:00 - 17:00 (America/Los_Angeles)

Paddle for Humanity, June 22, 2013, Minneapolis, MN
2013-06-22 | Unnamed Venue, Minneapolis, CA, United States

2013 Surftech Jay Moriarity Memorial Paddleboard Race
2013-06-22 | Capitola, CA, United States
Ocean of Hope will have its tent and information on sarcoma at the Jay Race, which starts at New Brighton State Beach and honors the legendary surfer Jay Moriarity.

Rock 2 Rock Paddleboard + Stand Up Paddling Race, June 16, 2013, Catalina Island, CA
2013-06-16 | New York, NY, United States
Rock 2 Rock is a challenging and fun 22-mile course from the Isthmus on Catalina Island to Cabrillo Beach in San Pedro. The race, started many years ago by Joe Bark, famed paddleboard shaper, continues under the leadership of George Loren. It is a qualifier for the Catalina Classic Paddleboard Marathon. You can race solo or in a team, traditional or stand-up. Awesome goody bags, pre- and post-race meals, a great finish line venue and the much-anticipated Ocean of Hope raffle of a Bark board — all good reasons to attend! $5 from every competitor’s race fee will be donated to the Alliance.

Association of Oncology Social Work
2013-06-05 - 2013-06-07 | San Diego, CA, United States
AOSW is an international nonprofit “dedicated to the enhancement of psychosocial services to people with cancer and their families.”

Paddle for Humanity, June 1, 2013, Deerfield Beach, FL
2013-06-01 | Deerfield Beach, FL, United States

Sarcoma Alliance for Research through Collaboration
2013-05-31 | Chicago, IL, United States
SARC, a nonprofit consortium of sarcoma physicians who conduct collaborative clinical trials, holds a biannual meeting at ASCO and CTOS each year. Arthur Beckert, executive director of the Alliance, attends to hear the latest on clinical trials and other sarcoma research. SARC’s website also has much useful information. By the way, some people confuse our nonprofit with SARC.

American Society of Clinical Oncology
2013-05-31 - 2013-06-04 | Chicago, IL, United States
ASCO‘s annual meeting draws thousands of oncologists from around the world. Arthur Beckert, executive director of the Alliance, will staff an informational booth in the exhibit hall, along with our sister organization, the Sarcoma Foundation of America. He will attend presentations on sarcoma to learn about the latest research and treatments and discuss sarcoma advocacy with representatives of other nonprofits. ASCO’s website has links to previous presentations on sarcoma, for those who would like to learn more.
