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DTSTART;VALUE=DATE:20221007
DTEND;VALUE=DATE:20221008
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UID:42664-1665100800-1665187199@sarcomaalliance.org
SUMMARY:16th Annual Putts for Ped
DESCRIPTION:[vc_row type=”in_container” full_screen_row_position=”middle” column_margin=”default” column_direction=”default” column_direction_tablet=”default” column_direction_phone=”default” scene_position=”center” text_color=”dark” text_align=”left” row_border_radius=”none” row_border_radius_applies=”bg” overflow=”visible” overlay_strength=”0.3″ gradient_direction=”left_to_right” shape_divider_position=”bottom” bg_image_animation=”none”][vc_column column_padding=”no-extra-padding” column_padding_tablet=”inherit” column_padding_phone=”inherit” column_padding_position=”all” column_element_spacing=”default” background_color_opacity=”1″ background_hover_color_opacity=”1″ column_shadow=”none” column_border_radius=”none” column_link_target=”_self” column_position=”default” gradient_direction=”left_to_right” overlay_strength=”0.3″ width=”1/1″ tablet_width_inherit=”default” tablet_text_alignment=”default” phone_text_alignment=”default” animation_type=”default” bg_image_animation=”none” border_type=”simple” column_border_width=”none” column_border_style=”solid”][vc_column_text]\n\nJoin us for a Best Ball Scramble Golf Outing in memory of Michael John Pedrick.\nThe 16th Annual Putts for Ped golf fundraiser will be hosted by Sarcoma Alliance Board President Jennifer Nellany. \nLocation: Rancocas Golf Club in Willingboro\, New Jersey When: Friday\, October 7\, 2022. Registration is 11:30 am-12:30 pm and shotgun starts at 1 pm. \nFor information about Rancocas Golf Club\, visit www.rancocasgc.com.For more information about the outing\, for sponsorship details\, or to register\, please email Jennifer Nellany at jnellany@yahoo.com. \nPutts for Ped 2022 Flyer \n  \n[/vc_column_text][nectar_btn size=”medium” open_new_tab=”true” button_style=”regular” button_color_2=”Accent-Color” solid_text_color_override=”#ffffff” icon_family=”none” text=”Donate to Putts for Ped” url=”https://sarcomaalliance.org/donate-putts-for-ped/”][/vc_column][/vc_row]
URL:https://sarcomaalliance.org/event/16th-annual-putts-for-ped/
LOCATION:Rancocas Golf Club\, 12 Club Ridge Lane\, Willingboro\, NJ\, 08046\, United States
CATEGORIES:Featured Event
ATTACH;FMTTYPE=image/jpeg:https://sarcomaalliance.org/wp-content/uploads/2021/05/golf-club-and-ball-up-close-scaled-e1620856714125.jpeg
ORGANIZER;CN="Jennifer Nellany":MAILTO:jnellany@yahoo.com
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DTSTART;TZID=America/New_York:20221022T080000
DTEND;TZID=America/New_York:20221022T140000
DTSTAMP:20260404T042533
CREATED:20220528T011238Z
LAST-MODIFIED:20220620T185217Z
UID:42465-1666425600-1666447200@sarcomaalliance.org
SUMMARY:Sully's Run
DESCRIPTION:[vc_row type=”in_container” full_screen_row_position=”middle” column_margin=”default” column_direction=”default” column_direction_tablet=”default” column_direction_phone=”default” scene_position=”center” text_color=”dark” text_align=”left” row_border_radius=”none” row_border_radius_applies=”bg” overlay_strength=”0.3″ gradient_direction=”left_to_right” shape_divider_position=”bottom” bg_image_animation=”none”][vc_column column_padding=”no-extra-padding” column_padding_tablet=”inherit” column_padding_phone=”inherit” column_padding_position=”all” column_element_spacing=”default” background_color_opacity=”1″ background_hover_color_opacity=”1″ column_shadow=”none” column_border_radius=”none” column_link_target=”_self” gradient_direction=”left_to_right” overlay_strength=”0.3″ width=”1/1″ tablet_width_inherit=”default” tablet_text_alignment=”default” phone_text_alignment=”default” bg_image_animation=”none” border_type=”simple” column_border_width=”none” column_border_style=”solid”][vc_column_text]\nJoin Sully’s Run\nA 5K race in honor of Lauren Sullivan\nWhen: October 22\, 2022\nWhere: Riverbend Park\, West Indiantown Road\, Jupiter\, FL\n\nHeld in memory of Lauren Sullivan\, who died of Follicular Dendritic Cell Sarcoma\, Sully’s Run is a beautiful 5-kilometer race course in Riverbend Park in Jupiter\, Florida. The race event will also include live music\, food trucks\, live raffles\, and much more. Sully’s Run is brought to you by the Pearl Mae Foundation\, for which Lauren Sullivan was the founding Executive Director. Join the event as a participant or come out to show your support and cheer everyone on!  \n[/vc_column_text][/vc_column][/vc_row][vc_row type=”in_container” full_screen_row_position=”middle” column_margin=”default” column_direction=”default” column_direction_tablet=”default” column_direction_phone=”default” scene_position=”center” text_color=”dark” text_align=”left” row_border_radius=”none” row_border_radius_applies=”bg” overlay_strength=”0.3″ gradient_direction=”left_to_right” shape_divider_position=”bottom” bg_image_animation=”none” shape_type=””][vc_column column_padding=”no-extra-padding” column_padding_tablet=”inherit” column_padding_phone=”inherit” column_padding_position=”all” column_element_spacing=”default” centered_text=”true” background_color_opacity=”1″ background_hover_color_opacity=”1″ column_shadow=”none” column_border_radius=”none” column_link_target=”_self” gradient_direction=”left_to_right” overlay_strength=”0.3″ width=”1/1″ tablet_width_inherit=”default” tablet_text_alignment=”default” phone_text_alignment=”default” bg_image_animation=”none” border_type=”simple” column_border_width=”none” column_border_style=”solid”][divider line_type=”Full Width Line” line_thickness=”1″ divider_color=”default” custom_height=”50″][vc_column_text]\nRace proceeds benefit the Sarcoma Alliance and the Pearl Mae Foundation.\nVisit the following website for more information about the race and registration. \n[/vc_column_text][nectar_btn size=”jumbo” open_new_tab=”true” button_style=”regular” button_color_2=”Extra-Color-1″ solid_text_color_override=”#ffffff” icon_family=”none” text=”Register or Learn More” url=”https://raceroster.com/events/2022/60382/sullys-run-5k?fbclid=IwAR2iel-QmDLG3EBiVkkrZYHbkm_ggXj47iiBrFkR3NL7xL4hkwhvqiZHaB0″][divider line_type=”Full Width Line” line_thickness=”1″ divider_color=”default” custom_height=”50″][/vc_column][/vc_row][vc_row type=”in_container” full_screen_row_position=”middle” column_margin=”default” column_direction=”default” column_direction_tablet=”default” column_direction_phone=”default” scene_position=”center” text_color=”dark” text_align=”left” row_border_radius=”none” row_border_radius_applies=”bg” overlay_strength=”0.3″ gradient_direction=”left_to_right” shape_divider_position=”bottom” bg_image_animation=”none”][vc_column column_padding=”no-extra-padding” column_padding_tablet=”inherit” column_padding_phone=”inherit” column_padding_position=”all” column_element_spacing=”default” background_color_opacity=”1″ background_hover_color_opacity=”1″ column_shadow=”none” column_border_radius=”none” column_link_target=”_self” gradient_direction=”left_to_right” overlay_strength=”0.3″ width=”1/1″ tablet_width_inherit=”default” tablet_text_alignment=”default” phone_text_alignment=”default” bg_image_animation=”none” border_type=”simple” column_border_width=”none” column_border_style=”solid”][vc_column_text]\n \nThe Pearl Mae Foundation focuses on helping Senior Citizens in Palm Beach County\, Florida. \n[/vc_column_text][/vc_column][/vc_row]
URL:https://sarcomaalliance.org/event/sullys-run/
LOCATION:Riverbend Park\, 9060 West Indiantown Road\, Jupiter\, FL\, 33478\, United States
CATEGORIES:Featured Event
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20241005
DTEND;VALUE=DATE:20241007
DTSTAMP:20260404T042533
CREATED:20240813T154844Z
LAST-MODIFIED:20240923T212419Z
UID:43042-1728086400-1728259199@sarcomaalliance.org
SUMMARY:Sarcoma Exchange 2024
DESCRIPTION:Join us for our seventh annual Sarcoma Exchange!\nOctober 5: 9:00 a.m. – 2:00 p.m. PDT\nOctober 6: 9:00 a.m. – 2:15 p.m. PDT\nClick here to Register \nThis event is specifically crafted for sarcoma patients and their caregivers\, offering a unique opportunity to hear directly from some of the top sarcoma specialists in the United States. \nThe agenda is designed to benefit both newly diagnosed and veteran patients\, covering a range of crucial topics. Attendees will gain valuable insights on the importance of second opinions\, the role of the immune system and immunotherapy\, the benefits of exercise\, and strategies for maintaining mental health. \nDon’t miss this chance to connect\, learn\, and empower yourself with knowledge from leading experts. \nClick here to see the agenda and confirmed speakers (subject to change)
URL:https://sarcomaalliance.org/event/sarcoma-exchange-2024/
LOCATION:NJ
CATEGORIES:Conferences,Featured Event
ATTACH;FMTTYPE=image/jpeg:https://sarcomaalliance.org/wp-content/uploads/2024/09/Sarcoma_exchange_announcement_graphic_QR_copy_2@4x-1001-scaled.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241026T073000
DTEND;TZID=America/New_York:20241026T110000
DTSTAMP:20260404T042533
CREATED:20241016T030128Z
LAST-MODIFIED:20241016T144719Z
UID:43082-1729927800-1729940400@sarcomaalliance.org
SUMMARY:Sully's Halloween Run 5k
DESCRIPTION:Sully’s Run is in honor of Lauren Sullivan\, the founding Executive Director of the Pearl Mae Foundation who died of a rare cancer called Follicular Dendritic Cell Sarcoma. Sully’s Halloween 5K Run will not only support the Pearl Mae Foundation’s mission of helping senior citizens in Palm Beach County\, Martin County and beyond\, but it will also raise money on behalf of the Sarcoma Alliance.
URL:https://sarcomaalliance.org/event/sullys-halloween-run-5k/
LOCATION:Riverbend Park\, 9060 West Indiantown Road\, Jupiter\, FL\, 33478\, United States
CATEGORIES:Featured Event
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241121T090000
DTEND;TZID=America/Los_Angeles:20241121T094500
DTSTAMP:20260404T042533
CREATED:20241027T162333Z
LAST-MODIFIED:20241027T191116Z
UID:43101-1732179600-1732182300@sarcomaalliance.org
SUMMARY:Free Webinar! 🌻 Navigating Desmoid Tumors - Education & Support: Empowering Through Knowledge & Community
DESCRIPTION:Join us for a free webinar sponsored by the Sarcoma Alliance and SpringWorks Therapeutics!\nREGISTER HERE\nNavigating Desmoid Tumors – Education & Support: Empowering Through Knowledge and Community\n  \nWhy the Patient Perspective is Crucial: \nUnderstanding the patient’s journey with desmoid tumors is essential for improving outcomes\, enhancing caregiver support\, and advancing healthcare strategies. Educational webinars focusing on patient\, healthcare professional\, and caregiver experiences provide invaluable insights\, fostering collaboration to tackle this rare and challenging disease. This holistic understanding aims to deliver better care\, more effective treatments\, and\, ultimately\, a higher quality of life for those affected by desmoid tumors. \nImportance for Patients: \nEmpowerment Through Knowledge: Understanding their journey empowers patients to take control of their health. Knowledge about symptoms\, diagnosis\, and treatment options helps them make informed decisions. \nEmotional Support and Validation: Sharing patient stories provides emotional support and validation. Knowing others have faced similar challenges reduces isolation and anxiety. \nImproved Communication with Healthcare Providers: Well-informed patients can communicate effectively with their healthcare team\, asking relevant questions and actively participating in their treatment plan. \nImportance for Healthcare Professionals: \nEnhanced Patient Care: Understanding patient perspectives enables healthcare professionals to provide empathetic and personalized care. This understanding helps tailor treatment plans to meet both medical and emotional needs. \nIdentification of Gaps in Care: Listening to patient experiences helps identify gaps in care and areas needing improvement. This can lead to advancements in diagnostics\, more effective treatments\, and enhanced support services for desmoid tumor patients. \nWhat You Will Gain: \nAttendees will come away with: \n\nKnowledge: A comprehensive understanding of desmoid tumors\, including symptoms\, treatment options\, and patient perspectives.\nSupport: Emotional support and connections with others in the desmoid community.\nCommunication Skills: Strategies for effective communication with healthcare providers.\nProfessional Insights: Healthcare professionals will gain insights to enhance patient care and identify areas for improvement in treatment and support services.\n\nWe HOPE you can join us!
URL:https://sarcomaalliance.org/event/free-webinar-navigating-desmoid-tumors-education-support-empowering-through-knowledge-community/
LOCATION:NJ
CATEGORIES:Featured Event
ATTACH;FMTTYPE=image/png:https://sarcomaalliance.org/wp-content/uploads/2024/10/Navigating-Desmoid-Tumors-Logo.png
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241220T090000
DTEND;TZID=America/Los_Angeles:20241220T094500
DTSTAMP:20260404T042533
CREATED:20241205T000222Z
LAST-MODIFIED:20241205T000222Z
UID:43150-1734685200-1734687900@sarcomaalliance.org
SUMMARY:Webinar: Navigating Desmoid Tumors - Long-Term Follow-Up & Survivorship
DESCRIPTION:
URL:https://sarcomaalliance.org/event/webinar-navigating-desmoid-tumors-long-term-follow-up-survivorship/
LOCATION:NJ
CATEGORIES:Featured Event
ATTACH;FMTTYPE=image/jpeg:https://sarcomaalliance.org/wp-content/uploads/2024/12/Desmoid_webinar_flyer_P2@4x-100-scaled.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250720T090000
DTEND;TZID=America/Los_Angeles:20250720T123000
DTSTAMP:20260404T042533
CREATED:20250624T143306Z
LAST-MODIFIED:20250710T084925Z
UID:43229-1753002000-1753014600@sarcomaalliance.org
SUMMARY:8th Annual Sarcoma Exchange
DESCRIPTION:  \nCheck out the agenda for this year’s program!\nSarcoma Exchange 2025 – Agenda
URL:https://sarcomaalliance.org/event/8th-annual-sarcoma-exchange/
LOCATION:NJ
CATEGORIES:Conferences,Featured Event
ATTACH;FMTTYPE=application/pdf:https://sarcomaalliance.org/wp-content/uploads/2025/06/2025-Sarcoma-Exchange-Assets-2.pdf
ORGANIZER;CN="The Sarcoma Alliance":MAILTO:info@sarcomaalliance.org
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