The Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education, and support.
Sarcoma Alliance History
Suzanne Leider founded the Sarcoma Alliance in 1999 in the living room of her home with the mantra “guidance, education, and support” in her head. After four years she finally met her first sarcoma survivor (Wendy Sommers), and she realized that sarcoma patients fall into a great void. Suzanne decided 4 years was too long to wait to meet a fellow survivor and decided to do something about it. With the help of friends, family and volunteers, The Sarcoma Alliance was born. Sarcoma Alliance is a nonprofit 501c(3) organization.
As a nurse, Suzanne focused on the care of the individual and quality of life. Her dream was for people with sarcoma to have the tools to fight this disease on physical, mental, and psychological levels. As a patient and a healthcare provider, she understood the difficulties of navigating our healthcare system. She knew that creating a gathering place for those touched by sarcoma would diminish the isolation of this diagnosis. The Sarcoma Alliance has created a community that can no longer be ignored.
Sarcoma does not discriminate by age, gender, or race. As a rare diagnosis, we unite a community which has special needs and requires special attention. Survival depends upon it. The Sarcoma Alliance is working to address the needs of this special community and to get you the necessary resources and attention you deserve.
The Sarcoma Alliance is striving to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education and support. Together we can make a difference.
All services provided by The Sarcoma Alliance are provided free of charge.
Please contact us with any personal biographies and photographs, articles, websites or other resources we should post on our site. You can reach the Alliance via e-mail, phone, fax or mail if you have questions or concerns. We look forward to hearing from you.