Teen and Young Adult Support

The websites listed below provide information and resources on the diagnosis and treatment of sarcoma in teens and young adults. The list also includes information on programs that support to teens and young adults with sarcoma along with support for their families.

Teen and Young Adult Support

Planet Cancer
The goal of Planet Cancer is to create an international network of young adults, ready and willing to help each other through what may well be the most difficult experience of their lives.

Group Loop
Group Loop is an innovative and groundbreaking program of The Wellness Community (TWC) to provide online support for teens with cancer and their parents. In addition to Online Support Groups (OSGs), Group Loop offers valuable resources and information for teens with cancer.

Teens Living With Cancer
Teens Living with Cancer offers sound medical information, endorsed by the premier children’s cooperative oncology research group in North America. It also provides effective psycho-social support designed to enhance a teen’s quality of life, based on real-life experiences of teens with cancer, their families and friends.

I’m Too Young for This
The mission of I’m Too Young for This is to empower young adults affected by cancer by ending isolation, improving quality of life and providing meaningful survivorship.

LiveStrong Young Adult Alliance
The LIVESTRONG Young Adult Alliance is a coalition of organizations with the goal to improve the survival rates and quality of life for young adults with cancer between the ages of 15 and 40. The Alliance is committed to promoting research and the investigation of the problem, serving as a voice for the issue and promoting effective solutions.

Ulman Cancer Fund for Young Adults
The Mission of the Ulman Cancer Fund for Young Adults is to enhance lives by supporting, educating and connecting young adults, and their loved ones, affected by cancer.

Young Survival Coalition
The Young Survival Coalition (YSC) is the premier international, nonprofit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer.

Real Time Cancer, an Initiative of Young Adult Cancer Canada
Young Adult Cancer Canada is committed to building an independent and sustainable cancer resource that provides hope, understanding, and inspiration to young adults by delivering key positive messages and sharing personal experiences of the challenges and triumphs of cancer by those who have experienced this significant life challenge.

National Collegiate Cancer Foundation
The National Collegiate Cancer Foundation’s mission is to provide services and support to young adults who have been diagnosed with cancer. Our goal is to help these survivors and their families establish a “Will Win” attitude in their fight.

Livestrong Foundation – Fertility Resource Guide
The Livestrong Foundation Fertility Resource Guide is a listing of resources providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.

The Cancer Smile
The mission of The Cancer Smile is to help and motivate cancer patients during and after treatment, letting cancer patients know that they are not alone in their battle with cancer. Its purpose is to bring a smile to the cancer patient’s face because while cancer can harm the body it can’t touch hope, laughter and love.

Adolescents and Young Adults with Cancer
The National Cancer Institute has created a new web portal for adolescents and young adults with cancer and those who care about them. The portal brings together material targeted to this age group and resources on AYA cancer, clinical trials, and organizations working in this area into one convenient place.

Teenage Cancer Trust
Teenage Cancer Trust is a UK charity dedicated to improving the quality of life and chances of survival for young people aged between 13 and 24 diagnosed with cancer in the UK.

Teen Cancer America
This American organization, similar to the UK one, focuses on improving care and treatment in the US for adolescents and young adults diagnosed with cancer.

Dan’s House of Hope
Housing specifically for adolescents and young adults  (AYA) in Houston, TX.

[Return to top]

Information about Cancer in Teens and Young Adults

Cancer.Net, Cancer in Young Adults
Cancer.Net brings the expertise and resources of the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians, to young adults living with cancer and those who care for and care about them.

A Snapshot of Adolescent and Young Adult Cancer A summary of information on the incidence of cancer among adolescents and young adults along with information on current research published by the National Cancer Institute. The link downloads the report.
http://www.cancer.gov/aboutnci/servingpeople/snapshots/AYA.pdf (PDF)

Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer, Report of the Adolescent and Young Adult Oncology Progress Review Group A review of the research and care needs of adolescents and young adults with cancer. Published by the National Cancer Institute, the review examines the unique needs of adolescents and young adults with cancer. The link downloads the report.
http://planning.cancer.gov/library/AYAO_PRG_Report_2006_FINAL.pdf (PDF)

Closing the Gap: A Strategic Plan for Addressing the Recommendations of the Adolescent and Young Adult Oncology Progress Review Group An action plan for the research and care needs of adolescents and young adults with cancer. Published by the LiveStrong Foundation, this action plan builds on the findings of the National Cancer Institute’s report Closing the Gap. The link downloads the report.
http://www.livestrong.org/What-We-Do/Our-Approach/Platforms-Priorities/AYAO-Progress-Review-Group-YAA-Priorities  (PDF)

Adolescent and Young Adult Cancer Care
An article by Dr. Karen Albritton, Chief of the Adolescent and Young Adult Oncology Program at the Dana-Farber Cancer Institute and Assistant Professor at the Center for Sarcoma and Bone Oncology at Harvard Medical School, on current research and care of adolescents and young adults with cancer.

[Return to top]

Teen and Young Adult Camps

First Descents
The mission of First Descents is to utilize whitewater kayaking and other outdoor adventure sports to promote emotional, psychological and physical healing for young adults with cancer.


Camp Mak-A-Dream
The mission of Camp Mak-A-Dream is to provide a medically-supervised, cost free Montana experience, in an intimate community setting, for children, young adults and families affected by cancer.

[Return to top]