Children – Support

Children – Support

The organizations listed below provide information and resources on the diagnosis and treatment of sarcoma in children as well as information on programs that provide support to children with sarcoma and their families. We also provide information and resources for adolescents and young adults with sarcoma.

Organizations that Provide Support and Programs for Children with Cancer

National Children’s Cancer Society
The mission of The National Children’s Cancer Society is to improve the quality of life for children with cancer and their families by providing financial and in-kind assistance, advocacy, support services and education.
http://www.children-cancer.com

Friends Network
Formerly the Kids Cancer Network, this organization provides activities such as the Funletter for children with cancer and information for their parents.
http://www.kidscancernetwork.org

Ped-Onc Resource Center: Support for Families of Cancer Kids
This section covers the non-medical aspects of having a child with cancer. These include resources for emotional support and psychological help for parents, support for kids and teens, help for educating a child with cancer, and help with financial, work, and insurance issues.
www.acor.org/ped-onc/cfissues/cfissues.html

Kids Konnected: Cancer Support and Education
This organization works to help children whose parent or other family member has cancer.
www.kidskonnected.org

Candlelighters: Childhood Cancer Foundation
The mission of Candlelighters is to provide information and awareness for children and adolescents with cancer and their families, to advocate for their needs, and to support research so every child survives and leads a long and healthy life.
http://www.acco.org/

Locks of Love
Locks of Love provides hairpieces to financially disadvantaged children in the United States and Canada under age 18 suffering from long-term medical hair loss from any diagnosis.
http://www.locksoflove.org

Make A Wish Foundation
The Make-A-Wish Foundation enriches the lives of children with life-threatening medical conditions through its wish-granting programs.
www.wish.org

SuperSibs!
The mission of SuperSibs! is to ensure that brothers and sisters of children with cancer are honored, supported and recognized – so they may face the future with strength, courage and hope.
www.supersibs.org

International Confederation of Childhood Cancer Parent Organizations
The mission of the International Confederation of Childhood Cancer Parent Organizations (ICCCPO) is on the cooperation and sharing of information and experiences between parent groups around around the world, so that all can benefit from it and become more effective in improving the treatment and care of children with cancer in their own countries.
www.icccpo.org/

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Organizations that Provide Medical Information on Childhood Cancer

National Cancer Institute’s Childhood Cancers
http://www.cancer.gov/cancertopics/types/childhoodcancers
National Cancer Institute’s Childhood Rhabdomyosarcoma
http://cancer.gov/cancertopics/types/childrhabdomyosarcoma
National Cancer Institute’s Ewing’s Family of Tumors
http://cancer.gov/cancertopics/types/ewing
National Cancer Institute’s Soft Tissue Sarcoma
http://cancer.gov/cancertopics/types/soft-tissue-sarcoma
Cure Our Children Foundation
The Ewing’s Sarcoma & Pediatric Cancer Support Group Resources Page, providing a wide variety of both medical and support information.
Ped-Onc Resource Center: Childhood Cancers Disease Directory
A resource developed and maintained by parents of children with cancer. This section covers the types of cancer that commonly affect children. Other sections cover treatment and survivorship issues.
www.acor.org/ped-onc/diseases/diseases.html

CureSearch CureSearch unites the world’s largest childhood cancer research organization, the Children’s Oncology Group, and the National Childhood Cancer Foundation through our mission to cure childhood cancer. Research is the key to the cure.
www.curesearch.org

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Advocacy Organizations

Children’s Cause
The Children’s Cause for Cancer Advocacy (CCCA) works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.
www.childrenscause.org

People Against Childhood Cancer
The mission of People Against Childhood Cancer is to raise awareness of childhood cancer.
curechildhoodcancer.ning.com

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Adolescent and Young Adult Support

Planet Cancer
The goal of Planet Cancer is to create an international network of young adults, ready and willing to help each other through what may well be the most difficult experience of their lives.
www.planetcancer.org

Group Loop
Group Loop is an innovative and groundbreaking program of The Wellness Community (TWC) to provide online support for teens with cancer and their parents. In addition to Online Support Groups (OSGs), Group Loop offers valuable resources and information for teens with cancer.
www.grouploop.org

Teens Living With Cancer
Teens Living with Cancer offers sound medical information, endorsed by the premier children’s cooperative oncology research group in North America. It also provides effective psycho-social support designed to enhance a teen’s quality of life, based on real-life experiences of teens with cancer, their families and friends.
www.teenslivingwithcancer.org

I’m Too Young for This
The mission of I’m Too Young for This is to empower young adults affected by cancer by ending isolation, improving quality of life and providing meaningful survivorship.
www.imtooyoungforthis.org

LiveStrong Young Adult Alliance
The LIVESTRONG Young Adult Alliance is a coalition of organizations with the goal to improve the survival rates and quality of life for young adults with cancer between the ages of 15 and 40. The Alliance is committed to promoting research and the investigation of the problem, serving as a voice for the issue and promoting effective solutions.
www.livestrong.org/yaa

Ulman Cancer Fund for Young Adults
The Mission of the Ulman Cancer Fund for Young Adults is to enhance lives by supporting, educating and connecting young adults, and their loved ones, affected by cancer.
www.ulmanfund.org

Young Survival Coalition
The Young Survival Coalition (YSC) is the premier international, nonprofit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer.
www.youngsurvival.org

Real Time Cancer, an Initiative of Young Adult Cancer Canada
Young Adult Cancer Canada is committed to building an independent and sustainable cancer resource that provides hope, understanding, and inspiration to young adults by delivering key positive messages and sharing personal experiences of the challenges and triumphs of cancer by those who have experienced this significant life challenge.
www.youngadultcancer.ca/

National Collegiate Cancer Foundation
The National Collegiate Cancer Foundation’s mission is to provide services and support to young adults who have been diagnosed with cancer. Our goal is to help these survivors and their families establish a “Will Win” attitude in their fight.
www.collegiatecancer.org

Fertile Hope
Fertile Hope is a national, nonprofit organization dedicated to providing reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
www.fertilehope.org

[Return to top] Information about Cancer in Adolescents and Young Adults
Cancer.Net, Cancer in Young Adults Cancer.Net brings the expertise and resources of the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians, to young adults living with cancer and those who care for and care about them.
www.cancer.net/patient/Coping/Age-Specific+Information/Cancer+in+Young+Adults A Snapshot of Adolescent and Young

Adult Cancer A summary of information on the incidence of cancer among adolescents and young adults along with information on current research published by the National Cancer Institute. The link downloads the report.
planning.cancer.gov/disease/AYA-Snapshot.pdf (PDF)

Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer, Report of the Adolescent and Young Adult Oncology Progress Review Group A review of the research and care needs of adolescents and young adults with cancer. Published by the National Cancer Institute, the review examines the unique needs of adolescents and young adults with cancer. The link downloads the report.
planning.cancer.gov/disease/AYAO_PRG_Report_2006_FINAL.pdf (PDF)

Closing the Gap: A Strategic Plan for Addressing the Recommendations of the Adolescent and Young Adult Oncology Progress Review Group An action plan for the research and care needs of adolescents and young adults with cancer. Published by the LiveStrong Foundation, this action plan builds on the findings of the National Cancer Institute’s report Closing the Gap. The link downloads the report.
www.livestrong.org/atf/cf/%7BD0794917-422C-499C-9C48-9ED3DDC42947%7D/LAF%20YAA%20Report.pdf (PDF)

Adolescent and Young Adult Cancer Care
An article by Dr. Karen Albritton, Chief of the Adolescent and Young Adult Oncology Program at the Dana-Farber Cancer Institute and Assistant Professor at the Center for Sarcoma and Bone Oncology at Harvard Medical School, on current research and care of adolescents and young adults with cancer.
www.sarcomahelp.org/learning_center/articles/aya.html

Technique enables previously sterile adult survivors of childhood cancer to father children A short paper from the American Society of Clinical Oncology
Journal of Clinical Oncology, March 14, 2011.
Fathering children after Cancer (pdf).

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Adolescent and Young Adult Camps
First Descents
The mission of First Descents is to utilize whitewater kayaking and other outdoor adventure sports to promote emotional, psychological and physical healing for young adults with cancer.
www.firstdescents.org

Camp Mak-A-Dream
The mission of Camp Mak-A-Dream is to provide a medically-supervised, cost free Montana experience, in an intimate community setting, for children, young adults and families affected by cancer.
www.campdream.org

Do you have excess unused medical supplies?

Afya Foundation – The Afya Foundation is a public health non-profit that recovers surplus medical supplies and equipment for a variety of sources to promote ongoing health initiatives in the developing world.  They have recently launched an initiative to involve childhood cancer patients called Kids Help Us Help Kids.  This program is a way for children who are sick to be able to give back to others in need.   As these children progress through their treatment and recover, they want to give them this opportunity.  Kids can give their extra or no linger needed supplies to children receiving care abroad.  The sense of empowerment and benefits that will come from this experience of giving are priceless.  By working together, everyone can make a significant difference in reducing unnecessary waste locally while building access to health abroad.  Donations can be sent to (indicate on the outside of the box that it is for Kids Help Us Help Kids Program): 140 Saw Mill River Road Yonkers, NY  10710

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