The Sarcoma Alliance is proud to partner with the following organizations to address the unique needs of cancer patients, particularly those with rare cancers such as sarcoma.
Cancer Financial Assistance Coalition
CFAC is a coalition of organizations helping cancer patients manage their financial challenges. Visit them at http://www.cancerfac.org.
The Kakkis Everylife Foundation
The Kakkis Everylife Foundation, Cure the Process, is dedicated to improving treatments for patients with very rare disorders through education and changes in the process of regulating the development of therapies. Visit their website at http://www.kakkis.org.
National Organization for Rare Diseases (NORD)
The National Organization for Rare Disorders (NORD) is a federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Visit them at http://www.rarediseases.org.
Patient Resource Cancer Guide
The Patient Resource Cancer Guide is a free publication that was created to empower and prepare newly diagnosed and newly restaged cancer patients to become their own advocates. Now in its fourth year, this comprehensive resource helps these patients and their families map the cancer journey. Read more or request your free copy.
While some researchers strive to understand sarcoma by studying tumor samples, 23andMe worked with the patient community to find genetic markers associated with the disease. The markers might help predict how likely someone is to develop sarcoma or how well a particular treatment will work for a specific patient. The Sarcoma Alliance was happy to help 23andMe reach its goal of getting genetic samples from 1,000 people. Visit 23andMe at www.23andme.com/sarcoma