Sarcoma
Sarcoma – Full texts of all articles from this journal devoted to sarcoma are available at: http://www.hindawi.com/journals/srcm/contents.html
Sarcomas as a Paradigm for Personalized Medicine and Targeted Therapies: New Directions and Innovative Approaches to Diagnosis and Treatments CME/CE
An Enduring Archived Webcast
Download the archived webcast
Expiration Date: June 29, 2009
Program Chair
George D. Demetri, MD
Director, Ludwig Center at Dana-Farber/Harvard Cancer Center and Sarcoma Center
Dana-Farber Cancer Institute
Program Faculty
Ramzi Dagher, MD
Deputy Division Director, DDOP/OODP/CDER
US Food and Drug Administration
Lee J. Helman, MD
Scientific Director for Clinical Research
Center for Cancer Research
National Cancer Institute
Brian Rubin, MD, PhD
Director, Soft Tissue Pathology
Cleveland Clinic
Lerner Research Institute and
Taussig Cancer Center
Mark Thornton, MD, PhD
President
Sarcoma Foundation
of America
Patient Registry Program
The Sarcoma Foundation of America (SFA) is managing a Sarcoma Patient Registry Program. The Registry records the significant events of the history and treatment of patients diagnosed with Sarcoma. The Registry is a data collection and reporting system hosted by Registry Partners and managed by SFA.
The Registry’s endeavor is to collect, store, analyze and interpret data on persons with sarcoma. SFA invites you to participate in its efforts to make the Sarcoma Patient Registry information as accurate and comprehensive as possible. By contributing, your data will be a valuable resource for oncologist and researchers conducting clinical trials and medical studies. Most of all, you will be helping to improve the care of current and future sarcoma patients.
You are eligible to join the Registry if you have been diagnosed with ANY sarcoma subtype.
If you have any questions or would like to join the Sarcoma Patient Registry, please send an email to sfa@registrypartners.com with your contact information and the most convenient time and method to contact you, or you can call toll free at (866) 501-6780
Resources
American Cancer Society
[http://www.cancer.org/]
ASCO - Sarcoma specific information: Click Here
People Living With Cancer - A patient website from the Amercian Society of Clinical Oncology (ASCO)
[http://www.plwc.org/portal/site/PLWC]
The Brain Tumor Society
[http://www.tbts.org/]
Cancer 411 - Cancer Information and Resources
[http://www.cancer411.org/]
Cancer Information and Support International
[http://www.cancer-info.com/]
Cancer Information Network
[http://www.cancernetwork.com/]
CancerNet: PDQ - NCI's Comprehensive Cancer Database
[http://www.cancer.gov/cancertopics/pdq/cancerdatabase]
The Doctors Doctor - Interpret Pathology Reports (for a fee)
[http://www.thedoctorsdoctor.com/f_home.html]
Steve Dunn's Cancer Guide - Patient Perspective
[http://cancerguide.org/]
FDA's Oncology Tools
[http://www.fda.gov/cder/cancer/]
Find Cancer Experts - Free Referrals for Pathologist Second Opinion
[http://www.findcancerexperts.com/]
Healthline - Cancer Channel
[http://www.healthline.com/channel/cancer.html]
InteliHealth - Comprehensive Health Information
[http://www.intelihealth.com]
National Comprehensive Cancer Network
http://www.nccn.org/
National Comprehensive Cancer Network - Website specifically for patients
http://www.nccn.com/
Nature Reviews Websites
[http://www.nature.com/nrc/info/info_links.html]
Oncolink - Cancer Information for Professionals and Lay Persons
[http://www.oncolink.com/]
Oncology Nursing Society Patient Education Page
[http://www.ons.org/patientEd/]
Patient Power - Web bases radio shows with discussion about various aspects of sarcoma care and diagnosis
http://www.patientpower.info/listenhealthtopiclist.asp?Topic=Sarcoma
Bone Cancers
Bone and Cancer Foundation
www.boneandcancerfoundation.org
The Center for Orthopedic Oncology and Musculoskeletal Research
[http://www.sarcoma.org/main.php?page=lss]
Euro Bone Net – Devoted to Bone Cancers
www.eurobonet.eu
Amputee Coalition of America
[http://www.amputee-coalition.org/]
Hemipelvectomy and Hip-Disarticulation Amputee Support and Information Site
[http://www.hphdhelp.org/]
Institute for Limb Preservation - Denver, CO
[http://www.limbpres.com/]
Booklets
Cancer Care – Sarcoma Treatment Update (a booklet)
http://www.cancercare.org/pdf/booklets/ccc_sarcoma.pdf
National Cancer Institute – Sarcoma Progress Review Group 2004
(a roadmap for organization of sarcoma treatment and research)
http://planning.cancer.gov/pdfprgreports/2004sarcoma.pdf
Disability
Americans with Disabilities Act - Questions & Answers
[http://www.usdoj.gov/crt/ada/qandaeng.htm]
Social Security - Disability Programs
[http://www.ssa.gov/disability/]
Drug Information
ACS Cancer Reference Info, click on Cancer Drug Guide
[http://www.cancer.org/docroot/cri/cri_0.asp]
Access to Unapproved Drugs
[http://www.fda.gov/cder/cancer/access.htm]
American Cancer Society's List of Information about Cancer Drugs
[http://www.cancer.org/docroot/ETO/eto_0.asp]
American Society of Health System Pharmacists
[http://www.ashp.org/]
The Medicine Program - Accessing Free Medication
[http://www.themedicineprogram.com/]
Needy Meds - Drug Assistance
[http://www.needymeds.com/]
Medscape's Drug Info
[http://www.medscape.com/druginfo]
Rx List - The Internet Drug Index
[http://www.rxlist.com/]
Hospice and Palliative Care
Hospice Foundation of America
[http://www.hospicefoundation.org/]
National Hospice and Palliative Care Organization
[http://www.nhpco.org/]
The Natural Death Care Project
[http://www.naturaldeathcare.org/]
Journals
Neurology Journals from The Lancet
Oncology Journals from The Lancet
Nutrition
International Bibliographic Information on Dietary Supplements
[http://ods.od.nih.gov/showpage.aspx?pageid=48]
Nutritional Research
[http://www.realtime.net/anr/]
Pain Management
American Pain Society
[http://www.ampainsoc.org/]
Cancer Pain Management Resource Center
[http://www.medscape.com/pages/editorial/resourcecenters/public/painmgmt/rc-painmgmt.ov]
Medscape - Cancer Pain Management Resource Center
[http://www.medscape.com/pages/editorial/resourcecenters/public/painmgmt/rc-painmgmt.ov]
National Comprehensive Cancer Network Pain Guidelines
[http://www.nccn.org/patient_gls/_english/_pain/index.htm]
Pain Management Resource
[http://www.partnersagainstpain.com/]
Resource Guide for People with Pain
[http://www.partnersagainstpain.com/patient-resources/free-materials.aspx?id=3]
World of Information on Pain
[http://www.pain.com/]
Radiation Therapies
Cancernet's Radiation Therapy and You
[http://www.cancer.gov/cancerinfo/radiation-therapy-and-you]
Staten Island, NY University Hospital - Radiation Oncology
[http://www.radiosurgury@siuh.edu/conindex5.html]
Fermi National Accelerator Laboratory - Neutron Beam Radiation
[http://adwww.fnal.gov/www/ntf/ntf_home.html]
Loma Linda, CA, University Medical Center - Proton Beam Radiotherapy
[http://www.llu.edu/proton/]
National Association for Proton Therapy
[http://www.proton-therapy.org/]
San Diego Gamma Knife Center
[http://www.sdgkc.com/]
Research
AACR - American Association for Cancer Research
[http://www.aacr.org/]
What is Angiogenesis?
[http://www.regardinghealth.com/Nebraska/CC/2001/07/11185.asp]
BioMedNet - Medline Access
[http://research.bmn.com/medline]
CancerProtocol.com
[http://www.cancerprotocol.com/]
Connective Tissue Oncology Society
www.ctos.org
Developing Cancer Therapies
[http://ctep.info.nih.gov]
Medscape Oncology Home Page
[http://www.medscape.com/Home/Topics/oncology/oncology.html]
Nutritional Research
[http://www.realtime.net/anr/]
Office of Rare Disease's
[http://ord.aspensys.com/asp/resources/rsch_trials.asp]
Office of Rare Diseases
[http://rarediseases.info.nih.gov/]
On-line Science and Medical Dictionaries
[http://www.sciencekomm.at/advice/dict.html#chem2=20]
Pub Med - Free Searches of US National Library of Medicine
[http://www.ncbi.nlm.nih.gov/entrez/query.fcgi]
Quackwatch - Guide to Health Fraud
[http://www.quackwatch.com/]
Sarcoma Alliance for Research through Collaboratin
[http://www.sarctrials.org/]
Other Resources
Cancer Care - Counseling, Education and Comprehensive Resource Guide
[http://www.cancercare.org/]
Cancer Supportive Care Program - Comprehensive Coping Guide
[http://www.cancersupportivecare.com/]
Cancer Survival Toolbox - Free Audio Program Teaching Self Advocacy Skills
[http://www.canceradvocacy.org/programs/toolbox.html]
Fatigue
[http://www.cancerfatigue.org/]
Look Good... Feel Better - Free Service for Women and Teens with Cancer
[http://lookgoodfeelbetter.org/]
National Cancer Institute - Coping with Cancer
[http://www.cancer.gov/cancerinfo/coping]
National Coalition for Cancer Survivorship - Advocacy
[http://www.canceradvocacy.org/]
National Lymphedema Network
[http://www.lymphnet.org/]
Oncology.com - Living with Cancer
[http://www.oncology.com/]
Side Effects of Chemotherapy - Anemia
[http://www.medscape.com/mp/rc/anemia]
Vital Options International - Telesupport Cancer Network and Radio Program
[http://www.vitaloptions.org/]
The Wellness Community - Free Professional Support Services
[http://www.wellness-community.org/]
Miscellaneous
National Institute's of Health Chemotherapy and You
[http://www.cancer.gov/cancerinfo/chemotherapy-and-you]
CyberMedTrials.org - Chemotherapy and Drug Side Effects
[http://www.cybermedtrials.org]
Angiogenesis Inhibitors for Cancer Treatment: The Basics
[http://press2.nci.nih.gov/sciencebehind/angiogenesis/angio00.htm]
Procrit.com - Anemia and Fatigue
[http://procrit.com/oncology/index.html]
Quackwatch - Guide to Health Fraud
[http://www.quackwatch.org/]
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